Sharon
Forum Replies Created
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I am going on 2 years with mild PF. My acupuncturist who also has a Master’s in Chinese medicine recommended Green Mandarin spread over your collarbones. I go to him for my back, but when I told him about my PF, he put needles in the collarbone area, the lung nexus. And told me of a friend with another type of lung impairment, who used Green Mandarin, took a hike into a higher elevation & did better than her friends. I tried it for a while, but didn’t notice any difference. (I am also on Symbicort, but can’t tell if it’s doing anything, either.) He also recommended Natura 25 mg food-grown zinc & TRU Niagen Pro 500 for cellular energy & repair. I am seeing a new pulmonologist at the end of this month. My former one goes through the motions–6 months after prescribing Symbicort, he asked if I rinsed my mouth afterward… Luckily I had read the directions. His assistant gives me a breathing test & he says I’m still in the normal range. That’s it. I don’t notice any breathing impairment except if lifting something heavy or walking uphill. Scary, but not terrible exacerbations both times. I don’t do those things anymore.
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After reading about zinc & PF, I asked my acupuncturist about it. He did some research & recommended Natura 25 mg Food-Grown zinc, plus TRU Niagin Pro 500, which supports mitochondrial health. He has Master degrees in acupuncture & Chinese herbal medicine, but does not disparage Western medicine.
I had started to go to him for back pain & fatigue. He has helped with both. My shortness of breath upon exertion has also improved since I told him about PF, but that could also be due to the pulmonologist prescribed Symbicort 80/4.5 with an extruder. I have noticed that I sleep better, although I was never diagnosed with sleep apnea.
I was diagnosed with mild stable IPF in the last 6 mos. I won’t know if any of this has helped until I am tested again. The problem was first spotted when I had a Medicare CT scan because I had been a heavy smoker. A follow-up CT scan indicated possible PF. A high resolution scan confirmed it. I’m not eager to subject my body to more radiation, so it may be a year or so before I can report any test results.