Ronald Cole
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I was diagnosed with IPF August 2021. Of course I was told I was told I had the disease for about 5 years. Was put on ofev and 24/7 oxygen. I decided to get listed for a bilateral lung transplant WOW! I’ve always been in good shape, never smoke or worked around chemicals. Yet this disease found me. April 23, 2022 I received my new lungs. Post transplant is a bit rough. I keep a positive attitude and zoom with a support group. I’ve met people you are 5 years post transplant and living well, despite the medication they will be taking for life. Being able to breathe without the oxygen tanks is such a relief. Keep positive enjoy as much life as you can and there’s nothing wrong with second chances.
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.ark thanks for sharing. I am in the pre transplant work up. Did you have any of the problems you mentioned pre transplant, or did develop after?
Ron
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Hello Duncan,
- I believe you should start the antifibrotics. Having IPF for seven years I started taking medication in my 6th year. The disease took hold and now I am awaiting a transplant. If I started it would prolonged couple more years. I wish you the best with your decision.
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Hello Lori,
I share your struggle. I can stay positive but not all the time. I am going through pre-transplant work up. I will need a bilateral transplant. Life has its twist and turns, somethings are out of our control. I will pray for you, may the Lord strengthen your faith and his spirit walk with you on this journey. ?
Ron