Tammy

Charlene, does the consumption ever make you feel like your heart races?

Charlene, were your 02 stats low all the time? Sitting, walking, moving? Sleeping? May I ask how low??

Did this work for you? I just feel like I can not take a deep breath. Hymalanian salt???

Anonymous,
<p style=”text-align: center;”>I am 49 years old and 207lbs. When you say ratio is low what does that mean?</p>

I had a spirometry test done but my pulmonologist never explained it to me. I’m not asking for medical advice just wondering if anyone knows about numbers? FVC actual:3.78 predicted:3.68 ,%predicted:103,CI range:2.96. All these columes will be in order:

Actual, predicted, % predicted

FEV1:3.25,2.92,111,2.32

FEV3:3.75,3.01,125,1.77…[Read more]

May I ask how far your oxygen drops when walking?? I have a pulse oximeter but I was told that when your walking it is not accurate because I’m moving or moving my finger?? I was told you had to be still.

I am so sorry for your loss.

What causes the pain in the neck and shoulders? What does it feel like

Was your heart rate high during rest and exercise or walking???

When I hear about shortness of breath, I always ask, what people mean by that, exactly? Like does it feel like omg I’m breathless? Or like I can’t take a deep breath? Or combination? And do most people feel like I have to stop to catch my breath? I know all people are different and it progresses differently but do most find it hard to breath…[Read more]

My symptoms started suddenly in September. Since then I have had 3 CTs, a VQ scan, Heart monitor, 2 echocardiograms and a tredmill test. There is absolutely no signs of PAH. I have seen 3 cardiologist to rule it out. My rapid heart rate started and then 2 days later shortness of breath. My heart rate is fine unless I am walking or standing up. I…[Read more]

Do heart rates go up and down with IPF?? Example: my HR only goes up when I move, stand up and walk. It goes back down immediately when resting or standing still. Down to as low as 54 sometimes.

I noticed my heart rate goes up even if I just roll over in bed. Or just cough, or move a little. I can be sitting and if I even move my leg it goes up. It comes back down quickly when I stand still or sit. It goes down to as low as 54 sometimes. I feeling like flip flops as well. My pulmonologist says everything is normal. What is normal? What is…[Read more]

I am in the US and to be honest I do not know which % or numbers are the most important on a PFT. My pulmonologist never explained my 2nd PFT test. The only part I seen marked A for abnormal was the RV/TLC amd mine was a 26 and predicted 35. How I understand it is that I don’t have enough left over air volume????? I don’t know. My pulmonologist…[Read more]

Why does PF IPF make you lose weight?????

Would you please share uour anti inflammatory diet?

May i ask how they seen the honeycomb feature? What test revealed it?

How long did it take for a diagnosis? What was the test they jad to do to diagnose PF? I see so many tests they can do. What are my chances of having a transplant if needed?

I am so sorry for your loss. You are in my prayers.