Forum Replies Created

  • Theresa Skuczas

    Member
    March 9, 2023 at 9:33 am in reply to: Life span

    Anyone have information on lung trandfustion life span???

  • Theresa Skuczas

    Member
    March 9, 2023 at 9:27 am in reply to: Weight Management is Hard with IPF

    I am on ofev; I have been on for a year. I can’t lose weight, and I have diarrhea every day. All day. I don’t eat much cause I feel full fast. ofve doses work but not for controlling weight. Also my face is swollen. I was thinking water retention.

  • Theresa Skuczas

    Member
    April 11, 2022 at 7:53 pm in reply to: Left side pain when lying horizontally

    Hi Thomas I have that still after they put in 3 heart stent did they do test to see if you have any blockages

  • Theresa Skuczas

    Member
    April 11, 2022 at 7:44 pm in reply to: Hobbies of Our Talented Forum Members!

    That is great,I am going to learn to make quilts. Right now I do a lot with my heat press.
    Resin on cups,and pour painting I love crafting if and I have time

  • Theresa Skuczas

    Member
    April 8, 2022 at 11:55 am in reply to: Newly diagnosed UIP OFEV advice

    I just found out I have IPF. I had symptoms for years the shortness of breath, which I noticed after I quit smoking20 years ago. Runny nose, mucus in chest and throat; all tests said normal. Then I had 3 stents in my heart, left hospital on oxygen 3 Lt. Still heart and lung doctors fighting over why.then after the Fourth visit to lung Dr. She heard clicking so ordered a high-resolution ct scan showed it on bottom of both lung, I don’t have my scrip yet but ordered OFEV if it helps to slow IPF I will take no matter the side effects.