[Timothy Black]

@mark-koziol

It is interesting Mark, your note on inflammation. I had a severe back injury in 86 and the injury lasted forever in various ways. In 2005 I started taking Tumeric as suggested. It was interesting because ailments, such as tightness, spasms, difficulty in sitting, walking and more slowly disappeared. It was astonishing.

I ran out a month ago and had to wait for a reorder. I didn’t give it much thought. But tightness, sciatica, and pain while trying to sleep returned after a month. With my one mile walking I had a back spasm this morning that I haven’t had in memory!

Turmeric arrived today. Hmmmm  Inflammation and causes. That’s interesting.

Thanks, Mark.

Be well!

[Timothy Black]

I am a part of the Patient Portals where I am kept up to date on test results, appointments and etc. I had a recent PFT and sent a note to the Dr asking for the results from the several I had.

FEV1 is mildly reduced. FVC is mildly reduced. FEV1/FVC ratio is normal.DLCO is severely reduced.

When a comparison was made to prior study from 9/5/19; there is a significant improvement in FEV1 and TLC; but 17% decrease in DLCO.

So I have no idea about the overall decrease. Their overall diagnosis has changed since the beginning. COPD / IPF / Sarcoidosis / and now it is IPF with the slow ending of sarcoidosis.

With my oxygen on with activity, my Dyspnea doesn’t seem to improve other than I stay alive and I stay a tad above 90 on my oxygen level. The Dr semi suggested a second opinion. He is a part of the local Lung & Allergy clinic.

No wonder I stay confused.

Tim

[Timothy Black]

Hey Mark.

E Gad. I have one foot in each camp so to speak. I had a TBI almost five years ago. From able to laid up it effects everything. In my confusion I have labeled much of lack of strength to my IPF. It dawned on me yesterday that my entire battle is up hill. 30k on my bicycle was six years ago.

Thanks

Tim

[Timothy Black]

And my apology. A little “off” lol. I wasn’t aware of the Ultimate Pulmonary Wellness and other things available here. Beside this new pulmonary, I am recovering too from another injury five years back. I’m a great learner but I’ve been slowed down.

[Timothy Black]

Marianne – Yes, idiopathic has become my label. A few others issues with the same pasted on them. LOL  Yeah, I worked with some odd chemicals in my laboratory years and isocyanate is most likely the lung culprit. I am one of those who want to understand which is a little funny because my view on life and all there is falls beyond belief and disbelief of things. Complexity is vast.

Charlene – Hope you do well with your appointment Friday. I have felt (lol?) that if I’m making progress and then the rug begins to slip out from under me, I want to understand it. An hour on the treadmill wearing oxygen and then having my progress begin to evaporate…. For solace I need a full class in pulmonary. Not that I am brilliant by I have self diagnosed twice before where the physician thought me wrong. I was right. Diagnosed at 28? That is a stumper. How old are you now?