• Posted by Timothy Black on May 13, 2019 at 4:24 pm

    Using the treadmill I built up to an hour  3 x week set at 2.3 mph. After a couple months of “feeling slow improvement” I began to feel my energy drain away. I always wore an oxygen tank on set at 2. I didn’t feel short of breath. I began to feel weak like I wasn’t getting the energy I needed. My oxygen level was 88 at the lowest but usually 94 – 96. Follow up at the lung clinic / doctor my lungs sound clear and normal. I am going in for a CT Scan and some blood tests. So here are my questions for the experienced to help me with.

    1) On Breo 1 x day. On Ventolin inhaler but I thought that I should take it when “I feel” like I need it. The Rx says 2 puffs twice a day. Should I become a regular user?

    2) Should I be using the treadmill for less time and build for a higher mph? Am I doing it wrong or inefficiently?  Same with getting back on my bicycle. Advice?

    Thanks again,



    Timothy Black replied 4 years, 11 months ago 3 Members · 4 Replies
  • 4 Replies
  • Timothy Black

    May 13, 2019 at 6:29 pm

    And my apology. A little “off” lol. I wasn’t aware of the Ultimate Pulmonary Wellness and other things available here. Beside this new pulmonary, I am recovering too from another injury five years back. I’m a great learner but I’ve been slowed down.

  • Charlene Marshall

    May 13, 2019 at 7:37 pm

    Hi Tim,

    Thanks for writing, and sharing a bit about your exercise regimen with us! I know exercising is so tough with this disease so kudos to you for keeping it up and continuing to try 🙂

    Yes Pulmonary Wellness by Noah Greenspan seems to be a very popular exercise program for many of us living with IPF. Have you tried it? I haven’t yet, just simply because I haven’t felt the need but likely will someday as my lungs continue to deteriorate. I can’t endorse it of course but I know a lot of people who have been happy with the program. Your oxygen levels seem good at 94-96, especially during exercise but probably good to keep the oxygen on. As for your questions:

    1. I also have ventolin prescribed as a PRN (as needed basis, basically) and I don’t find it does a lot for me. My script says two puffs every 4 hours but I have to admit that I haven’t really stuck to that. I was on a couple of steroid inhalers too, but had to change one of them (Symbicort) due to not being able to take a deep enough breath for the turbuhaler. Do you find the ventolin helps the shortness of breath or any other IPF-related symptoms you get? I don’t imagine taking it faithfully would cause any harm but definitely work checking with your doctor about.


    2. I don’t have much to contribute to the exercise regimen unfortunately. Do you @mark-koziol? I walk on the treadmill with oxygen for about 30 minutes and don’t have a bicycle yet, although hoping to get one for the basement as well. Mark has a really good exercise regimen and is quite committed to it. Maybe he can share more?

    Take care and feel free to write any time Timothy! Best wishes.

  • Mark Koziol

    May 14, 2019 at 6:05 am

    Hello Tim, I am by far not an expert but I did follow closely what my pulmonary rehab team was saying to me. A lot of their system is on how your body uses metabolic equivalent for task (METS). I provided a link. When I was done with phase II pulmonary rehab I began phase III pulmonary rehab which is done by myself. I do several days a week at their facility and several at my local gym. For cardio, I walk, ride bike, take my dog for a walk, do the eliptical, and the stairmaster. I try to improve each day but sometimes it may not be that easy. There are other factors; rough night sleeping, I may have worked my legs extremely hard, just feeling not myself. These are taken into account when I work out. I also do free weights, weight machines, and also resistance exercises. I do all parts of the body. Pre transplant I had to do everything sitting down because my sats would go below 88% very quickly. Try to get into a pulmonary rehab program or do one online they will have the answers you are searching for. Keep in touch, Mark.

  • Timothy Black

    May 14, 2019 at 3:00 pm

    Hey Mark.

    E Gad. I have one foot in each camp so to speak. I had a TBI almost five years ago. From able to laid up it effects everything. In my confusion I have labeled much of lack of strength to my IPF. It dawned on me yesterday that my entire battle is up hill. 30k on my bicycle was six years ago.



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