Forum Replies Created

  • Tina Casini Weedon

    Member
    July 6, 2021 at 10:13 am in reply to: High Humidity Can Be A Hurdle for Patients with PF

    I live in FL. & I’m experiencing the affects more strongly this year. Exhaustion has got me tired & napping more then I would like.
    I’m fortunate to have a pool in our community, so to combat the heat I do daytime activities at night. (not being much of a morning person)
    If there is no thunder or lightning I will go to the pool even if it is raining, also ride my bicycle at night.

  • Tina Casini Weedon

    Member
    August 20, 2020 at 9:33 am in reply to: Starting Ofev

    Hi Charlene,

    I just started ofev, so I’d like to answer your ???

    1. I started ofev about 4 months after being diagnosed.

    2. I can’t remember if he told me the severity of PF but I new

    it was mild because the only symptom was a large amount of mucus, no breathing problems.

    3.  Dr. said between the two ofev was more effective drug.

    4. I have just taken my third pill.

    5. I have been pleasantly surprised that I have no side effects other then some constipation. Hopefully when the drug is fully in my system I will remain side effect free.

    6. I don’t have a singular cause for my PF, but there are numerous reasons  that could have caused it. This is only my opinion though.

    1. Thank you for this site. It thoroughly covers all aspects of this disease & it is comforting to hear from people like myself.