[Terri Little]

Hi Charlene,

I currently do chair yoga with a seniors group 2 times a week (I also try to do some of the moves at home/work, but could do better at that).  Yoga is so focused on breathing and being mindful of your breathe along with stretching, it’s something I found I can do without oxygen.

On a side note:  interestingly enough I never had a doctor encourage me to stay active, I think it was my own instinct of fight that said to do something.

Thank you for posting this – encouraging to go out and do more.

Terri

[Terri Little]

Hi Charlene,

I don’t know anything yet about the trial. My dr sent my history off for them to look at and I’m waiting to be accepted.  I’m sorry I wasn’t clear on that.  I really don’t know what to expect right now, but when I find out, I’ll respond back on this thread.

 

Thank you,

Terri

[Terri Little]

Hi Charlene,

No, I didn’t have any issues prior to my diagnosis.  And, I don’t drink much, so unless it’s a special occasion I just abstain now.  I just thought it was odd that alcohol (red wine especially) would have an affect on my breathing.

 

Thanks for your thoughts!

Terri

[Terri Little]

My pulmonary dr is currently trying to get me into a trial program at Washington University in St. Louis Mo. I’m surprised they are not listed or that he (my dr) did not direct me to the one in Chesterfield Mo, which is just as close as the other.  I’m thankful for the list – I’m assuming the treatment sites listed are up to speed on the best medications/treatments available for PF (IPF) patients.