[Terry Neu]

Thanks to everyone that responded.

[Terry Neu]

Tammy,

Yes, I am currently on OFEV. Was just brought down from 150mg to 100mg after 4.5 years. I was having side effects develope so doctor reduced the strength.

[Terry Neu]

Thank you everyone for your responses. Kathryn, I am so sorry for your loss, you will be in my thoughts and prayers. I will ask the doctor for numbers next I see him in October. Last time I saw my Pulmonologist he had me do a 6 minute walk test and I passed with flying colors. I told him my oxygen can sometimes get down to the mid 70’s if going up a hill (not a whole lot of steep hills in northern Indiana)but tapers off when hitting level ground again. So luckily I am not on oxygen yet. I do have some support system with my family but being as I have not declined much nobody is in a panic right at this moment. I am soon to be 64 in August. I only mention that so you have some idea of my age bracket.  Once again thanks for your responses.

[Terry Neu]

Thank you for the suggestion. I will try that.

[Terry Neu]

I have struggled eating healthy all of my adult life. I like fruits and vegetable but dislike salad, and salad is what all the experts push. Its very frustrating and stressful. My Pulmonologist wants me to lose some weight and I am trying. I am seeing a dietician but she just throws a bunch of papers at me and tells me to follow these rules. I was really hoping we could talk and discuss my likes and dislikes and help with the meal plans but I don’t think that how doctors are trained.  I am about ready to throw in the towel and say forget it. I do get daily exercise with walks and home exercises. I was going to the local pulmonary rehabilitation place pretty regular but with covid that came to an end.

I was diagnosed with IPF 16 months ago and have not had any major problems yet, thank the Lord. I guess I will just take one day at a time.

Terry

[Terry Neu]

Thanks, Bill.  It sounds like your experience is pretty similar to mine.  No, I do not have a Spigometer and you mentioning it is the first I’ve ever heard of one.  I will ask about it at CVS the next time I’m there.  One of the bad things about this disease, you never know when an episode is going to happen.  Then soon after you’ll be coasting along again.  Thanks for your reply.