I tried upping my oxygen from 2 to 3 or 4 at night. It didn’t take long until I developed swollen ankles and calves. I did did some research and found there is such a thing as oxygen toxicity. I reduced my settings back to 2 and my feet and legs went back to normal size. You can look it up on Wikipedia. The damage can be severe. Check with your…

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Look up the following word on your computer or iPad.

Nerandomilast. Yes it is spelled correctly.

I have owned a home with two fireplaces. One is vented and the other is ventless. They are completely turned off in the summer, even the pilot lights. I can’t tell they have made any difference whatsoever either in winter or summer in regards to my breathing.

I take OFEV but have the same lack of stamina issues. I struggle to go to the bathroom. It has gotten much worse the last month but has leveled off.

I have been able to stop most of the coughing with a 5 day treatment of prednisone. Ask your physician about that.

Chest medical journal/flecainide.

There is such a thing as oxygen toxicity. Too much oxygen is as bad as not enough. You can google it you may be astonished. I recommend that you ask your doctor to do an overnight test to determine just how much oxygen you actually need.

My Afib was not caused by OFEV. I’ve had Afib for over 20 years.

One of the side effects of OFEV is diarrhea, Imodium helps control the diarrhea and can be purchased at Costco for a much cheaper price.

Also, if the diarrhea is very severe the his doctor might lower the dose from 150 milligrams twice per day to 100 milligrams twice per day.…

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Hello Margo,

My name is John. I have had IPF for 7 years. I have been taking OFEV for over 5 years. I also have a heart condition know as Afib.

I have been to Hawaii many times. If you do go to Hawaii you will need to fly. Planes are all pressurized for 8,000 feet. So it feels like you are at 8,000 when you are really at 35,000 feet. People…

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You might talk to your pulmonologist about the amount of oxygen you are using. There is such a thing as oxygen toxicity. Too much is as bad or worse than not enough. You can also look it up on http://www.mayoclinic.com. I was amazed when I checked into it.

Open Doors has a cost support program as indicated in a previous reply. I have found it useful. 866 673 6366.

If you want to try this drug as a Guinea pig. You can read up on the right to try law passed in 2017 and signed by President Trump.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7416898/#S14title

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7416898/#S14title<div>This article discusses the right to try law. Lots of reading but interesting. </div><div>
</div><div>John</div><div>
</div>

I would recommend Imodium to you folks having diarrhea type side effects from Ofev. I have been on ofev for almost 5 years and I have been able to blunt the side effects to a manageable degree. When it gets too bad I skip a dose of ofev to make better, probably only maybe once a month. There is a generic version of Imodium which is much… Read more

I would suggest that you try taking one Imodium per day to help with the diarrhea. I did and it helped. I take one every day and on Sunday, Tuesday, Thursday and Saturday I take an additional one half Imodium. After several years of experimenting this works best. If it gets too bad I skip an ofev dose but not very often, maybe once a month. I… Read more

You might want to try a humidifier to relieve some of the nose dryness. Also spray her nose with saline solution as it will clean her nose, prevent infection and relieve dryness in her nostrils. Best of luck.

I have an Ogen one G5 that goes up to 6 LPM.

Good luck. They are pricy.

The numbers can change for a variety of reasons. The temperature, humidity, state of his health such as a bad cold or just the sniffles.
The percentage of oxygen in the air is the same but cold dry air is much more compact than warm moist air so in summer it’s much easier to breathe in cool air conditioning than outdoors in warm humid… Read more

I have two types of oxygen concentrators. One is continuing flow and the other is a pulse flow. I don’t know what you have but when you use a pulse flow machine breathing fast actually slows it down. The instructions with mine say not to breathe fast or deeply as that interferes with the rhythm of the machine. Just to turn the number of liters… Read more

Check your filters on your oxygen machine. You might need to clean them.
check to see if your medical records show any stenosis in your pulmonary veins that run from your lungs to your heart.  There are four of them. If you have had a heart ablation there is a possibility your pulmonary veins have stenosis. A symptom of this is shortness… Read more

I just read that it is coming out in generic. It didn’t say when it would be available to get an Rx for the generic version but I assume it should be soon. They will need some time to get the manufacturing process going and then the actual distribution to pharmacies. Ask your doctor or pharmacy when it will be available.

I am 84 years old. I have had two shots plus a booster. And a flu shot every year for probably 30 or 40 years. I was diagnosed wit IPF in November 2018. I have been taking Ofev since January 1, 2019.

I contracted Covid-19 either late January or early February of 2022. Symptoms were mild as were my wife’s. We both tested positive with a home kit… Read more

Has anyone experienced the effects ofev has on nose bleeds?  I’ve been having considerable difficulty with nose bleeds lately. A nose bleed every day for 10 days.  They have taken me off eliquis and ofev temporarily until the bleeding issue is resolved.

I have IPF and Afib, I Have been taking OFEV since January 1, 2019 (almost 3 1/2 years.) I have had 4 ablations for AFIB since 2009. I have been taking eliquis since then. When I started taking OFEV they cut my eliquis from 5 mg twice a day to 2 1/2 mg twice a day. I also take flecainide 50 mg twice per day for my AFIB. So far so good. Hope… Read more

My cardiologist has forbidden me to take Benadryl. I have a fib

I have been on OFEV for almost 3 years. I take 150 mg twice per day. At first I had minor abdominal cramps and still do. I started have diarrhea to the extent it was aggravating so I started taking Imodium. It controlled it somewhat. I started taking one every other day and it helped some. I changed to one every day and and that helped even… Read more

Remember the formula for water is H2O.

I have found that the ipratropium helps a lot.

I feel so bad for that lady and have great fear of putting my wife through something similar. I’m 84 and she is 81. We have been married 63 years and dated 3 years before getting married. I was diagnosed in November 2018 and on OFEV since January 1, 2019. Doing pretty well so far.