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    • #33202
      Natalie Mondor
      Participant

      Hello

      I am aware of only three portable oxygen concentrators that deliver up to 3LPM. Are there any that go higher? How do people who need 4 + LPM leave the house? Go to the doctor?

      Thanks in advance for any suggestions.
      Natalie

    • #33205
      David Hendricks
      Participant

      I was diagnosed with IPF in July of 2021. I left the hospital on 2LPM resting and 4 active. It took a month before someone came out with a portable concentrator for me and then I was told it would not work because I needed constant flow. Since then I have been dragging around size D and E tanks when I go out. In November it was increased to 4 and 8LPM and in April I went to 8 and 15LPM. After several falls from low oxygen I got a wheelchair and use it when leaving the house. This keeps me at 8LPM most of the time. Usually when I leave we take 2 E size tanks to have enough. It’s  a pain in the butt, but I do what I need to do.

      Dave

      • #33208
        M Harris
        Participant

        Read the oxygen manifesto part 2 by Dr.Noah Greenspan.

        • This reply was modified 1 month, 3 weeks ago by M Harris.
      • #33225
        Natalie Mondor
        Participant

        Hello Dave,

        Thanks for sharing details of your oxygen use. We’re all doing what we can. It’s hard to cope sometimes. This group helps.
        Best

        Natalie

      • #33245
        Walt
        Participant

        Caire Freestyle Comfort gets you five.

        Get two batteries with it. They don’t last long at five. You can charge it in your car tho.

        caireinc.com/product/freestyle-comfort/

    • #33206
      Randy
      Participant

      Natalie,

      Your problem is one that most of us have that have this thing called IPF. After diagnoised and then getting out of the hospital after 4 months in 2020, I used oxygen cylinders that put out 4 at that time. It was very oxward trying to get around with them and only having an 1 or so. I bought an Inogen 5 that is suppose to go to 6. It works fine if you not doing to much. I have now used it for 2 years. My breathing is getting worse and my doc told me the Inogen doesn’t put out what it says. At 6 it really only puts out about 4 which isn’t working for me anymore. So, it looks like I will be back on the oxygen bottles again soon. My home compactor I have on 7.5 to just get me around in the house. There are other companies out there with machines, but don’t do any better then Inogen. The are pules, not flow which doesn’t help much. What we need is a company that puts out a machine that actually does flow and put out an honest 6.

      Sorry to not be of much help, but this is what I have found over the past 2 years. Good luck.

      • #33226
        Natalie Mondor
        Participant

        Randy,

        Thanks. I completely agree. I spoke with a someone at the oxygen concentrator store in Colorado and he said that the POC numbers aren’t the same as the LPM numbers. The Inogen and others deliver the equivalent of 1-2 lpm continuous and those other numbers are to accommodate different breathers on the POC. But still no higher than 2 LPM.  Too few people need the higher oxygen levels it would seem.
        Take care

        Natalie

    • #33211
      Karen Bowen
      Participant

      Hi again….. I’m on 4lpm myself & when my stats crash I have to sometime bump up to as high as 7lpm, 6 at the least. Doesn’t give any of the tanks much life. There is something called an oxymizer that can be used to conserve oxygen. I believe you need to be tested for it to make sure you’re a candidate for using it. Your RT will test you.

      ***If anyone reading this understands more anouth them, pls shoust out 🙂 Karen

      • #33227
        Natalie Mondor
        Participant

        Karen

        Thanks for this information. I was thinking that maybe the Sequal 5 might work, as it goes to 3 LPM continuous and has 6 POC settings. But if I understand correctly, the max is still 3 LPM.
        Hope you are doing well.
        Natalie

      • #33257
        David Hendricks
        Participant

        Hi Karen

        I have tried an oxymizer three times (Several weeks at a time) and never found them useful. Maybe it is just me but I monitored my oxygen level with my pulse-ox and it appeared my level dropped just as fast using the oxymizer. I was told I could drop my oxygen amount by more than 50% using one but I guess I am the exception to the rule.

        Dave

        • #33279
          Natalie Mondor
          Participant

          Dave

          I read that the oxymizer is for tanks and in home continuous units, not pulse machines.

          Natalie

    • #33212
      george connell
      Participant

      Phillips sells a portable device that delivers 5lpm

    • #33214
      Harletta Carathel
      Participant

      The Respertonics simply go mini s to 5. I use it in a back pack so my hands are free

    • #33220
      Kulvinder Singh
      Participant

      https://www.oxygentimes.com/oxygen-concentrator/portable

      Please Check this link if it helps you to find Oxygen-Ooncentrator

    • #33246
      Jill
      Participant

      If your state and oxygen supplier has liquid oxygen, those portable units go up to 15L. That’s what my husband uses both around the house and when he leaves. He wears it in a backpack or the shoulder strap it came with. I know not all states have liquid, but it sure is wonderful compared to a d or e tank. By the time he was diagnosed he needed more oxygen than a POC could deliver.

    • #33247
      Anne
      Participant

      I use a portable concentrator when I leave the car and I ride my scooter. I am fine with a low number of O2 when I sit. In order to get into the car, I use a 50 foot or 75 foot tube (depending whether I am driving or riding) from my 10 unit in the house plug into the wall concentrator all the way to the car. I leave the tube in the garage to use when I get home.

      If you use a scooter or electric wheelchair, which I use both, then you wont need as much O2. Your scooter can carry your O2 tanks on the back of it.

      Anne

    • #33263
      Charles
      Participant

      Natalie, there is a company called “SupercareHealth”. 1 800 206 4880. They have a 5 hour portable but only lasts for a couple of hours while on five, they also have a portable that goes to four and can last for six to eight hours. Give them a call. I think that they are all over the USA. Chuck Gerson

    • #33264
      Christine McCann
      Participant

      My Inogen goes up to 6.

    • #33265
      John Fraze
      Participant

      I have an Ogen one G5 that goes up to 6 LPM.

      Good luck. They are pricy.

    • #33266
      Natalie Mondor
      Participant

      Thanks to everyone for their responses. They have been most helpful. I will check out all the information you suggested.
      Natalie

    • #33284
      Jeffrey Carver
      Participant

      My own solution doesn’t seem to have been mentioned. I do have an Inogen 5, and like others, I quickly learned that it was not enough for active outings such as walking the dogs. I’m generally at 4 LPM at home when active, and settings of 4, or even 5 or 6, on the Inogen are not the same. The numeric settings on the portable concentrators are NOT liters per minute!

      However, my supplier set me up with a refillable system that sits on my big O2 concentrator at home. One small tank and one medium. The small tank has its own regulator, which can do pulsed breath from 1-5, or 2L continuous. It turns out that the pulsed breath at 5 actually seems equivalent to 4LPM at home, or maybe a little better. That’s based on how well it seems to keep my O2 up when I’m out walking the dogs. Way better than the Inogen at setting 5. On the little tank, with a breathing rate of about 40-45 BPM when I’m walking, I can take a 35-40 minute walk and still have maybe 10 minutes of reserve left.

      For longer outings, I use the larger tank or the Inogen. The Inogen is fine for shopping trips, etc., where I’m in the car or walking sedately through a store.

       

    • #33496
      Natalie Mondor
      Participant

      Here’s an update to this post from last month: I got a Sequal 5 (19 pounds) from my provider. The unit is both continuous (up to 3 LPM) and POC (up to 6 whatever ml that is). At 3 LPM, it has only 75 minutes of battery. It charges in the car, but only at 2LPM. Otherwise it will charge to 3 but it takes a few hours. I keep it plugged in 24/7. It is useful IMO, but has limitations.

      I got an Oxymizer from Amazon for $25, no prescription needed. It took a lot of trial and error and calls to their tech line to figure out how to breathe. You have to inhale AND exhale through your nose. No mouth at all. Breaths need to be deep but at normal speed. Too shallow and your sats will fall. It’s hard to get the hang of it. It increased the O2 by about 20%. However I am hoping more practice will increase the O2 more.
      On a bit of good news: I had a HRCT in mid October and there was no progression since early June. The Dr decided no Ofev at this time. Next PFT is the end of December.
      Best wishes to all, Natalie

       

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