Australia’s national registry of patients with idiopathic pulmonary fibrosis (IPF) includes patients of diverse ages, disease severity and co-morbidities, and shows that baseline lung function and GAP (gender, age, physiology) stage are important prognostic markers for mortality. The study, “Baseline characteristics of idiopathic pulmonary fibrosis: analysis from the…
Australian IPF Registry Identifies Characteristics, Predictors of Mortality Among Idiopathic Pulmonary Fibrosis Patients
Being diagnosed with a chronic disease like pulmonary fibrosis can often lead to feelings of isolation and loneliness. Even if you have the full support of family and friends, you may feel that they don’t really understand what you’re going through physically and emotionally. MORE: Six pulmonary fibrosis complications Finding support is a…
New York Yankees legend Bernie Williams is collaborating with Boehringer Ingelheim to raise awareness of idiopathic pulmonary fibrosis (IPF), a disease that took the life of his father, Barnabé Williams, in 2001. Williams will participate in the Sin Aliento campaign on Father’s Day, June 18, to encourage those who may have IPF to…
The public’s interest in essential oils (EOs) — their uses, benefits, and safety — has been on the rise for several years. The most common means of using EOs is through aromatherapy, which includes having a diffuser in your home and or carrying a personal diffuser with you. You’ll find…
In a recent column, I wrote about how I felt and acted much differently than normal. I mentioned that I was grumpy, irritable, quiet, and mad, and I referenced a few things and reasons that left me feeling this way. What I neglected to mention is another…
Pulmatrix, which develops inhaled therapies for lung diseases, has licensed the kinase inhibitor compounds that RespiVert has created to inhibit enzymes involved in inflammation. “These new compounds will significantly expand what we believe is already an impressive pipeline of [Pulmatrix’s] drug candidates,” Dr. Robert Clarke, Pulmatrix’s CEO, said in a…
If you have a friend or family member who has recently been diagnosed with pulmonary fibrosis (PF) or is living with the condition, you’re probably wondering what you can do to support them. As our columnist Charleen Marshall explains, there will be times when your loved one doesn’t need any help.
An arm of People for the Ethical Treatment of Animals (PETA) is donating equipment that allows for animal-free testing of the effects of inhaled particles on the lungs to select laboratories across the United States and Europe. Valued at more than $400,000, the Vitrocell Systems inhalation device exposes human lung cells to tested materials…
There is much talk in medical circles about the use of medical marijuana (or cannabis) for a variety of chronic illnesses, but could it also benefit those living with chronic lung disease? MORE: Seven common symptoms of pulmonary fibrosis Medical marijuana is currently legal in 23 states in the U.S., as…
Last week, I shared how common it is for patients and loved ones to struggle with the severity of our PF diagnosis. We are all equipped differently to handle emotional pain and face the reality of what we are dealing with. Our faith can be a…
