The Pulmonary Fibrosis Foundation (PFF) say 1,000 people have enrolled on its PFF Patient Registry, an initiative to track data from PF patients nationwide. The registry will help researchers better understand pulmonary fibrosis by compiling data on disease progression, patient profiles and efficacy of available treatments. Enrollment is on track to…
Pulmonary Fibrosis Foundation Registers 1,000th Patient, Reaching Half of Registry Enrollment Target
I have been reminded of the power of a team in the fight against idiopathic pulmonary fibrosis (IPF) in my past few weeks of recovery since recent setbacks and further decline of lung function. While I consider myself an incredibly unlucky person to have been diagnosed with an…
Asking for help can be tough I was quite independent before I was diagnosed with pulmonary fibrosis (PF) and often busy running my own counseling practice, writing, speaking, and living my life. I was active in every area of my life, but boy has that changed since…
https://www.youtube.com/watch?v=rCZunn4ML5o If you’re living with a chronic illness, it’s easy to slip into a malaise and feel sorry for yourself. This isn’t a helpful state of mind and it potentially means you’re missing out on life. In this video from NewLifeOutlook, Anna Scanlon shares her five…
In most cases of pulmonary fibrosis, doctors are unable to establish the exact cause of the disease, though it’s suspected to be a combination of genetics and environmental triggers. When there’s no known cause, the disease is called idiopathic pulmonary fibrosis (IPF). For a small number of cases, there is a known…
Veracyte presented pivotal clinical validation data on the performance of its Envisia Genomic Classifier to diagnose idiopathic pulmonary fibrosis (IPF) at the American Thoracic Society (ATS) 2017 International Conference, held May 19-24 in Washington, D.C. IPF, a type of interstitial lung disease (ILD), is often challenging to diagnose. Each year, doctors in…
https://www.youtube.com/watch?v=dpUNgYbsQms If you have a chronic illness, you know just how much energy it takes to complete your daily chores and common household tasks. In this video from newlifeoutlook, Jennifer shares some practical tips to help make life a little easier for anyone suffering from a chronic illness. MORE: Nine tips…
Almost 37 percent of idiopathic pulmonary fibrosis patients who took Ofev for a year had no decline in a key measure of lung function, double the 18 percent of those on a placebo, according to one of three recent Ofev presentations in Washington. The results of that study applied to a…
Patients with idiopathic pulmonary fibrosis (IPF) want more information from their doctors at diagnosis, according to the results of a new survey. Researchers said that only half of patients surveyed report discussing antifibrotic treatment decisions with their doctors when they’re diagnosed. Results of the survey study, titled “Differences in…
Treatment with Genentech‘s FDA-approved Esbriet (pirfenidone) has been shown in two independent studies to improve moderate to more severe lung function impairment in patients with idiopathic pulmonary fibrosis (IPF). The results of the studies were recently presented at the American Thoracic Society International Conference (ATS 2017) May 19-24 in Washington,…
