How to Find Support for Pulmonary Fibrosis

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by Wendy Henderson |

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Being diagnosed with a chronic disease like pulmonary fibrosis can often lead to feelings of isolation and loneliness. Even if you have the full support of family and friends, you may feel that they don’t really understand what you’re going through physically and emotionally.

MORE: Six pulmonary fibrosis complications

Finding support is a crucial step in coming to terms with your diagnosis. As the Pulmonary Fibrosis Foundation explains, seeking support offers you a chance to connect with people going through exactly the same thing as you are, and as time goes by, you will be in a position to offer solace and advice to others who have been newly diagnosed.

Here are some great resources for seeking out support after a diagnosis:

Local Support 
Details of local support groups for people with chronic pulmonary diseases may be found at your hospital or doctor’s office.

Online Support Groups
Many non-profit organizations also run online support groups or forums; details can usually be found on their websites.

Social Media
Type in the hashtag #pulmonaryfibrosis or #PF on Instagram or Twitter to find details of fellow PF sufferers. You can also search for Facebook groups and pages by using the search function.

Start Your Own Group
If you prefer to meet face to face with people but there isn’t a support group near you, set up your own. Ask if you can put up a flyer at your pulmonologist’s office so others can find your details more easily.

MORE: Woman with pulmonary fibrosis sets up her own support group

Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or another qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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