Inspired by an article written by a wonderful writer, and talented individual who I’m lucky enough to call a friend, I have decided use this post and take a look back at what my life was like a year ago, before IPF. This feels significant in a few different ways,…
Remembering Significant Life Events Before IPF
‘Exhale, Mindfully Manage Your IPF’ is a new initiative co-sponsored by the American Association of Cardiovascular and Pulmonary Rehabilitation (AACVPR), the Pulmonary Fibrosis Foundation, and the international biotechnology firm Genentech. The program’s aim is to help people living with idiopathic pulmonary fibrosis (IPF), and encourage…
Pulmonary Fibrosis Quote: Life in Your Years Living with pulmonary fibrosis is often challenging. Share this quote for pulmonary fibrosis on Pinterest to keep it all in perspective. Remember to live life to the fullest everyday. Abraham Lincoln said, “It’s not the years in your life that count. It’s the…
If you’re like me, you may have different reactions to the phrase “advocate for yourself.” I get it. Your experience, upbringing and background may embrace this message wholeheartedly, or you may shrink back from it either because you were taught not to advocate for yourself, or you simply…
Having to live with a disease like pulmonary fibrosis may be difficult most of the time. But there are some things you can do that may help you manage your condition and make your days a little bit easier. Here are nine tips to help you manage your pulmonary fibrosis (source:…
The National Heart, Lung, and Blood Institute of the National Institutes of Health (NIH) awarded a seven-year grant worth $5.2 million to a team of researchers looking into the cellular and molecular mechanisms that promote lung regeneration, and aiming to develop therapies for children with hereditary lung diseases and adults with pulmonary fibrosis…
In this Boehringer Ingelheim Idiopathic Pulmonary Fibrosis video shared in September 2014, Professor Ulrich Costabel from the Department of Pneumology and Allergology at the Ruhrlandklinik in Essen, Germany talks about the early signs of idiopathic pulmonary fibrosis. Find out more about staying healthy when you have idiopathic pulmonary fibrosis…
In this video from the Canadian Pulmonary Fibrosis Foundation, shared in September 2014, a number of Canada’s leading pulmonary doctors and nurses, along with patients and caregivers, explain what it’s like to live with idiopathic pulmonary fibrosis. Discover why pulmonary fibrosis is so difficult to diagnose and treat. IPF…
Welcome to my column! As indicated by its title, “Younger than 30: Living with IPF,” I am a 28-year-old female recently diagnosed with idiopathic pulmonary fibrosis and trying to adjust to life with a fatal and debilitating disease as a young adult with much on the go. One of the biggest,…
Many different treatment options exist for patients with pulmonary fibrosis, but the treatment of last resort is lung transplant. Typically, lung transplants are suggested for patients whose lung disease is so progressed that they will not likely live another year or two. Lung transplants can dramatically improve the quality of life for people with acute…
