Renate Huebner was diagnosed with pulmonary fibrosis at the age of 65 in August 2012. With 10 children and 38 grandchildren, Renate’s large family didn’t quite understand the disease at first. Now, after her death a year ago, the family is focused on the project Give Air and continuing the matriarch’s…
PF Testimony: Huebner Family Creates “Give Air” to Honor Mother
https://www.youtube.com/watch?v=tnjwJTTVmKs&feature=youtu.be Living with a chronic illness means that not all days are good days. Sometimes you wake up feeling unwell but still have to get on and do things, leave your house and face the day. To help you through those rough days, Lauren from …
https://www.youtube.com/watch?v=sB71s2_klbA I Am News, a local community news project from Swansea, UK, shared this video where you can meet Margaret Marsh. Margaret is an idiopathic pulmonary fibrosis patient, a member of the British Lung Foundation and Chair of Chepstow Breathe Easy Group. In this video, she…
While living with a serious rare lung condition such as pulmonary fibrosis, it is understandable that several doubts and questions about it may come up. In this video, shared by Demystifying Medicine, learn more about some important questions regarding pulmonary fibrosis. Is PF the…
Netrin-1, a factor produced by the extracellular matrix, drives the production and accumulation of fibrocytes, a fibrosis-promoting cell type in patients with systemic sclerosis (SSc)-induced pulmonary fibrosis, according to a study by Yale University School of Medicine researchers. Fibrocytes are cells that often reside in the extracellular matrix —…
https://www.youtube.com/watch?v=QZjVxgHXR8E I Am News, a local community news project from Swansea, UK, shared this video where you can meet Margaret Barnard. Margaret is a chronic obstructive pulmonary disease patient, a member of the British Lung Foundation and Breathe Easy Group. In this video, she shares a little bit…
You’ve probably already heard about stem cells and their healing power. Several disease can be treated by using stem cells treatments and therapies, pulmonary fibrosis being one of them. But what exactly are stem cells and how can they be so versatile to be able to be used as…
In this recent line of videos by this father of two named Mark, we are presented with his story of resilience and strength. In 2014, his health was rapidly declining and he found himself bedridden for most of the year because of the deterioration in his lung functions due to…
Veracyte, Inc., recently announced that data from multiple studies supporting the ability of its diagnostic tests to help detect pulmonary disease, including idiopathic pulmonary fibrosis (IPF), will be presented at the American Thoracic Society (ATS) 2016 International Conference taking place in San Francisco. Veracyte will discuss findings from a total of eight studies, two…
https://www.youtube.com/watch?v=LLupXGkga5g I Am News, a local community news project from Swansea, UK, shared this video where you can meet Margaret Barnard. Margaret is a chronic obstructive pulmonary disease patient, a member of the British Lung Foundation and Breathe Easy Group. In this video, she shares a little…
