PFF Care Center Network is a group of medical centers which dedicate their work to improving the lives of those living with pulmonary fibrosis. According to the Pulmonary Fibrosis Foundation, these kinds of centers are expanding and keep growing. Their main purpose is to treat patients with…
PFF Care Center Network: What You Need to Know
Pediatric Lung Transplant: Little Ghadah’s Story
In this video from Cincinnati Children’s Hospital Medical Center, meet little Ghadah, a baby girl who suffers from a rare lung disease and needed a lung transplant. Parents do everything for their children, and that’s what Faleh Alrashidi, from Saudi Arabia, did. He searched for…
Antegrin Therapeutics recently announced that it is expanding its current medication portfolio to include anti-fibrosis agents that block proteins known as integrins. The drugs were originally discovered at the Center for World Health & Medicine (CWHM) at Saint Louis University. Antegrin already offers several medications that target conditions characterized by fibrosis, including pulmonary…
In this video from Gifted Life, watch Lauren answer eight questions about transplants that she usually gets asked about. Watch the full video to learn more about her transplant journey. Learn more about pulmonary fibrosis: https://bit.ly/1VElTQA…
In this video from CHEOvideos, watch Dr. Bernard Thébau, a physician in the Neonatal Intensive Care Unit at Children’s Hospital of Eastern Ontario, talk about the healing possibilities stem cells from umbilical cords can have to treat lung disease in premature newborns. Watch the…
Researchers at Weill Cornell Medicine showed that starving a group of immune cells by inhibiting the activity of the enzyme Arginase-1 impairs the cells’ ability to induce an allergic response. The study, “Arginase 1 is an innate lymphoid-cell-intrinsic metabolic checkpoint controlling type 2 inflammation,” published in the journal…
4 Pulmonary Fibrosis Treatments
It’s widely known that genetics may be a cause of the development of pulmonary fibrosis, but in the majority of the cases, the cause is unknown — a condition known as idiopathic pulmonary fibrosis. Each patient tends to have an individualized experience with the disease, which can progress faster or…
In this video from Baylor Scott & White Health, watch David P. Mason, M.D., chief of thoracic surgery and lung transplantation, discuss what lung transplantation is, and how it can both extend and improve pulmonary fibrosis and other lung diseases patients’ life. Learn more about…
Analysis of pooled data from three international, randomized, and placebo-controlled clinical trails — the Phase 2 TOMORROW trial and two Phase 3 INPULSIS trials — showed that nintedanib (Ofev) is an efficient and safe drug for the treatment of patients with idiopathic pulmonary fibrosis (IPF). The study, “Nintedanib…
Pulmonary Fibrosis Community Resources
Pulmonary Fibrosis Foundation shares a lot of tips on its website about how to deal with your pulmonary fibrosis. One of the things it wants to remind you is to be aware of how and where you search for information about your disease on the internet…
Your PF Community
Recommended Posts
- Checking 1 gene’s activity may aid in sleep apnea detection in IPF
- Addressing muscle deconditioning associated with pulmonary fibrosis
- Inhaled form of approved treatment boosts lung drug levels in IPF trials
- Support groups changed my perspective on using portable oxygen
- Education is a crucial part of pulmonary fibrosis awareness
