Meet Horace Owens. Horace has pulmonary fibrosis, an incurable lung disease. In this video, he shares his story with you, talks about the disease that his taking his live, how he was diagnosed and how he hopes to get a treatment and a cure for pulmonary fibrosis. …
My Pulmonary Fibrosis Story: Horace Owens
Meet Lizi. In this video, she takes us through some of the most common things people with invisible illnesses or who are chronically ill hear from others. Learn more about pulmonary fibrosis:Â https://bit.ly/1lfMsiZ…
A case study of a pulmonary fibrosis patient who was ultimately diagnosed with liver cirrhosis and a telomere length disorder, highlighted the need to consider whether short telomere syndrome is present in people with lung fibrosis and cirrhotic liver. The findings were published in the journal QJM: An International Journal…
“A short video containing key facts and statistics about idiopathic pulmonary fibrosis. A disease which is five times more common than cystic fibrosis, however is almost unheard of by the vast majority of the public. Together we can raise awareness for this life-threatening illness.” Learn more about idiopathic…
https://www.youtube.com/watch?v=45usWTn8wvo “5 million people worldwide have a form of pulmonary fibrosis; most patients are diagnosed 1 to 12 years after their first symptoms.” Learn more about pulmonary fibrosis:Â https://bit.ly/1lfMsiZ…
Lungs are vital organs. They allow the body to take in oxygen and get rid of carbon dioxide, which is what we call respirations. Sometimes the immune system does not react well to the new lungs after a lung transplant. Watch the video to learn more about this.
Meet youtuber Kelly Patricia and watch her talk and explain how it is to live with an invisible illness. “I made this video in honor of all of us who are fighting invisible illnesses. I hope that this can have its own meaning to you. Always remember that…
https://www.youtube.com/watch?v=DGOc-O6244w Watch Dr. Kevin Huffman, from the Lung Institute, Tampa, Florida, talk about the “FDA fast-tracked Ofev and Esbriet as approved medications for IPF. Together with stem cell therapy, we’re closer to finding a cure for IPF.” Learn more about IPF:Â https://bit.ly/1QiRmr3…
Meet Mel Bennett. In this 2012 video, he tells us about his life living with pulmonary fibrosis. He explains how he was diagnosed and how his life became after he got the news. He was told he would only have 2 and a half years to live. Learn more about…
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