“Ever wanted to know what NOT to say to someone living with a chronic illness? Well here is your 101 on things you probably shouldn’t say.” Learn more about pulmonary fibrosis: https://bit.ly/1lfMsiZ…
Learn more about IPF: https://bit.ly/1QiRmr3…
Last week’s hot topic on pulmonary fibrosis was NY Times Covers Story of IPF Patient’s Progress with Esbriet Treatment written by Isaura Santos. This article follows a story covered by the NY Times, about an IPF patient’s…
A European survey of patients with idiopathic pulmonary fibrosis (IPF) found that patients well understand the disease’s significant physical and emotional impact on their quality of life, and are frustrated by a perceived lack of quality IPF information and public understanding. The study also underscored the beneficial role of patients’ caregivers and specialist nurses, where available.
A new article that reviews available treatment options for idiopathic pulmonary fibrosis (IPF) took a critical but positive look at available research information for OFEV (nintedanib). The article focuses on the clinical evidence supporting nintedanib as an IPF treatment and on the drug’s pharmacological characteristics. The article, titled “Idiopathic…
Idiopathic pulmonary fibrosis patients experiencing acute exacerbations (IPF-AE) who have a history of immunosuppression and high-dose steroid use are likely to have measurably worse survival outcomes than IPF-AE patients not under such treatment, a new study reported. The research article, “Survival in Idiopathic pulmonary fibrosis acute exacerbations: the non-steroid approach,” was published…
James Doohan was a Canadian actor best known for his role as Montgomery “Scotty” Scott in the television and film series Star Trek. Doohan died on July 20, 2005, at his home in Redmond, Washington due to complications of pulmonary fibrosis, which was believed to be from…
In this map, you can see the location of PF Warrior Patients, caregivers and support Groups along with care center network locations. Learn more about pulmonary fibrosis: https://bit.ly/1lfMsiZ…
Researchers from a large number of international institutions have published an integrated analysis showing that long-term treatment with pirfenidone (Esbriet, Genentech, Roche) in patients with idiopathic pulmonary fibrosis (IPF) can be considered safe. The study, “Safety of pirfenidone in patients with idiopathic pulmonary fibrosis: integrated analysis of…
Read the articles here: 1. Tissue Engineering Grows New Lungs in Lab That Could Revolutionize IPF Treatment 2. NY Times Covers Story of IPF Patient’s Progress with Esbriet Treatment 3. IPF Disease Carries High Economic and Healthcare Burden…
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