This is a video from 2011 and it recalls May 1st, when history was made. 15 skateboarders traveled 45 miles to raise money for pulmonary fibrosis research. From Bethesda, to Georgetown, to Rosslyn, to Alexandria, to George Washington’s house, back to Rosslyn. Learn more about pulmonary fibrosis: https://bit.ly/1lfMsiZ…
Skateboarding 45 miles for Pulmonary Fibrosis Research
Idiopathic Pulmonary Fibrosis: Moira’s Story
“In 2013 Moira was diagnosed with idiopathic pulmonary fibrosis, a rare lung disease. Although her lung capacity has decreased, her spirits are still high and after six months of being confined to her home she chose to go out for a coffee on her birthday.” Learn more about…
Pulmonary Fibrosis Awareness
Krysten Knievel speaks on behalf of Pulmonary Fibrosis Foundation in honor of her grandfather, Evel Knievel. Learn more about pulmonary fibrosis:Â https://bit.ly/1lfMsiZ…
Lung Transplant: The Recovery
Meet Dr. Daniel Dilling and Karen Pelletiere and watch them talk about different aspects of the recovery from transplant surgery at Loyola University Medical Center. Learn more about lung transplants:Â https://bit.ly/1SNRT3u…
My Pulmonary Fibrosis Story: Horace Owens
Meet Horace Owens. Horace has pulmonary fibrosis, an incurable lung disease. In this video, he shares his story with you, talks about the disease that his taking his live, how he was diagnosed and how he hopes to get a treatment and a cure for pulmonary fibrosis. …
Chronic Illness: Things People Say
Meet Lizi. In this video, she takes us through some of the most common things people with invisible illnesses or who are chronically ill hear from others. Learn more about pulmonary fibrosis:Â https://bit.ly/1lfMsiZ…
A case study of a pulmonary fibrosis patient who was ultimately diagnosed with liver cirrhosis and a telomere length disorder, highlighted the need to consider whether short telomere syndrome is present in people with lung fibrosis and cirrhotic liver. The findings were published in the journal QJM: An International Journal…
Idiopathic Pulmonary Fibrosis: Some Keys Facts
“A short video containing key facts and statistics about idiopathic pulmonary fibrosis. A disease which is five times more common than cystic fibrosis, however is almost unheard of by the vast majority of the public. Together we can raise awareness for this life-threatening illness.” Learn more about idiopathic…
Pulmonary Fibrosis Awareness
https://www.youtube.com/watch?v=45usWTn8wvo “5 million people worldwide have a form of pulmonary fibrosis; most patients are diagnosed 1 to 12 years after their first symptoms.” Learn more about pulmonary fibrosis:Â https://bit.ly/1lfMsiZ…
Lung Transplants: What You Need to Know
Lungs are vital organs. They allow the body to take in oxygen and get rid of carbon dioxide, which is what we call respirations. Sometimes the immune system does not react well to the new lungs after a lung transplant. Watch the video to learn more about this.
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