April 9, 2021April 9, 2021

$5M Donation From Grateful Patient Helps VCU Health Expand PF Care

News

Thanks to a $5 million donation from a grateful patient, Virginia Commonwealth University (VCU) Health is expanding its programs to treat those with lung diseases like pulmonary fibrosis (PF). After ... Read more

April 8, 2021April 6, 2021

What It Means When I Say I Had a ‘Bad Clinic Day’

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Outpatient pulmonology appointments are common for people with idiopathic pulmonary fibrosis (IPF). The frequency of these appointments varies, depending on how the disease progresses, but spending a day at the ... Read more

April 7, 2021April 7, 2021

Amgen to Acquire Rodeo Therapeutics, Preclinical Program for PF

News

Amgen will acquire Rodeo Therapeutics, along with its preclinical program focused on the development of potential therapies for inflammatory and fibrotic diseases like pulmonary fibrosis (PF). “With decades of experience ... Read more

April 6, 2021April 6, 2021

Esbriet, Ofev Found to Benefit IPF Patients in Clinical Practice

Esbriet, News

Two approved anti-fibrotics are proving to be safe and effective in treating idiopathic pulmonary fibrosis (IPF), a study with real-world data reports. The data showed Esbriet (pirfenidone) and Ofev (nintedanib) ... Read more

April 5, 2021April 5, 2021

FDA Approves Tyvaso, 1st Treatment Aiding Exercise With PH-ILD

News

Tyvaso (inhaled treprostinil) has been approved as the first treatment to improve exercise ability in people with pulmonary hypertension associated with interstitial lung disease (PH-ILD) in the U.S. PH-ILD is ... Read more

April 2, 2021April 2, 2021

KL-6 Protein Found to Be a Promising Biomarker for IPF Prognosis

News

A protein linked to lung inflammation, known as Krebs von den Lungen-6, or KL-6, was found to be a reliable biomarker for the prognosis of patients with idiopathic pulmonary fibrosis ... Read more

April 1, 2021March 30, 2021

How COVID-19 Has Shifted People’s Lives and Habits

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

March 11 was the one-year anniversary of the World Health Organization declaring COVID-19 a pandemic. Since then, I’ve been reflecting. I’ve learned a lot this year about myself and others. ... Read more

March 31, 2021March 30, 2021

Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds

News, syndicated

As anyone affected by a rare disease knows, treating the illness while trying to go about everyday life is an expensive undertaking.  But exactly how expensive — in terms of ... Read more

March 31, 2021March 31, 2021

Ofev’s Ability to Slow Decline in Progressing ILDs Not Dependent on Prior Therapy

News

The ability of Ofev (nintedanib) to improve lung function in people with progressive fibrosing interstitial lung diseases (ILDs) is not influenced by their use of immunomodulatory therapies, a study indicates. ... Read more

March 30, 2021March 30, 2021

IPF Diagnosis and Treatment Changing for Better in UK, Registry Study Finds

News

Changes for the better in diagnosing idiopathic pulmonary fibrosis (IPF) and managing patients in the U.K. are evident in recent years, a real-world study based on registry data indicates. “Patient registries offer ... Read more

March 29, 2021March 29, 2021

Lassen, Cedars Sinai Partner to Advance Antibody Therapies for IPF

News

Lassen Therapeutics and researchers at Cedars Sinai Medical Center in California will together investigate the role of the immune signaling protein interleukin-11 (IL-11) in idiopathic pulmonary fibrosis (IPF), and its ... Read more

March 26, 2021March 24, 2021

Finding Peace and Power With Breathing Exercises

Columns, Courage to Care - a column by Christie Patient

Breathing exercises are an important part of pulmonary rehabilitation. These exercises help keep the lungs healthy and uphold the integrity of the muscles we use to breathe. Practicing these when ... Read more