December 11, 2019December 11, 2019
Men With IPF Have Poorer Lung Function, More Heart Diseases Than Women, Swedish Study Finds
News
Men with idiopathic pulmonary fibrosis (IPF) have poorer lung function and a higher frequency of heart-related diseases (comorbidities) ... Read more
December 10, 2019December 10, 2019
IPF Common Interstitial Lung Disease in CARE-PF Registry Enrolling in Canada
News
The Canadian Registry for Pulmonary Fibrosis (CARE-PF) enrolled in its first 18 months more than 1,200 people with interstitial ... Read more
December 9, 2019December 5, 2019
Why Common Illnesses Pose Greater Risks for Those with PF
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
I am slowly emerging following several weeks of hospital visits and confinement to bed. I’ve been extremely weak and ... Read more
December 9, 2019December 9, 2019
Algernon’s NP-120 Surpasses Merck’s MK-7264 in Reducing Cough Frequency in Animal Model of Acute Cough, Study Shows
News
Algernon Pharmaceuticals‘s NP-120 (ifenprodil) outperformed Merck‘s MK-7264 (gefapixant) in an animal model of acute cough, a preclinical study by a contract research ... Read more
December 6, 2019December 11, 2019
I Write for Comfort, Even When It’s Uncomfortable
Columns, Courage to Care - a column by Christie Patient
When I started writing this column it felt like such a gift to have a space to share my ... Read more
December 6, 2019December 6, 2019
Enrollment in Phase 2 Trial of Setanaxib for IPF to Start Soon
News
Enrollment in the Phase 2 clinical trial of setanaxib (GKT831), an oral investigational treatment for idiopathic pulmonary fibrosis ... Read more
December 5, 2019December 3, 2019
I’m Grateful to Celebrate My Fourth ‘Lungiversary’
Columns, Gonna Live My Life by Mark Koziol
Thanksgiving is over, but my feeling of gratitude remains. As a single-lung transplant recipient, the holiday is a time ... Read more
December 5, 2019December 5, 2019
HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases
News
Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases ... Read more
December 4, 2019December 4, 2019
BioMed X, Boehringer Ingelheim Find Potential Therapeutic Targets for IPF
News
A joint research project between BioMed X and Boehringer Ingelheim has identified a new set of potential epigenetic targets for ... Read more
December 3, 2019December 3, 2019
Esbriet Reduces Risk of Acute Flares Following Cancer Removal Surgery in IPF Patients, Study Finds
News
Treatment with Esbriet (pirfenidone) before and after cancer removal surgery reduces the risks of acute flares following the ... Read more
December 2, 2019November 26, 2019
Preparing for the Holiday Season as a PF Patient
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
I love Christmas and all that comes with it: the lights, music, decorations, parades, and Christmas trees. But I ... Read more
December 2, 2019December 2, 2019
Idebenone, an Approved Brain Stimulant, Could Prevent and Treat PF, Study Suggests
News
Idebenone, an antioxidant molecule used to treat Alzheimer’s disease and other brain-damaging conditions, prevented lung damage in a mouse ... Read more

December 11, 2019December 11, 2019

Men With IPF Have Poorer Lung Function, More Heart Diseases Than Women, Swedish Study Finds

News

Men with idiopathic pulmonary fibrosis (IPF) have poorer lung function and a higher frequency of heart-related diseases (comorbidities) than women with IPF, according to a Swedish study. The data, ... Read more

December 10, 2019December 10, 2019

IPF Common Interstitial Lung Disease in CARE-PF Registry Enrolling in Canada

News

The Canadian Registry for Pulmonary Fibrosis (CARE-PF) enrolled in its first 18 months more than 1,200 people with interstitial lung disease (ILD), with more than half having either idiopathic ... Read more

December 9, 2019December 5, 2019

Why Common Illnesses Pose Greater Risks for Those with PF

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

I am slowly emerging following several weeks of hospital visits and confinement to bed. I’ve been extremely weak and unable to eat thanks to bacterial pneumonia and the influenza ... Read more

December 9, 2019December 9, 2019

Algernon’s NP-120 Surpasses Merck’s MK-7264 in Reducing Cough Frequency in Animal Model of Acute Cough, Study Shows

News

Algernon Pharmaceuticals‘s NP-120 (ifenprodil) outperformed Merck‘s MK-7264 (gefapixant) in an animal model of acute cough, a preclinical study by a contract research organization (CRO) shows. NP-120 is Algernon’s repurposed lead candidate for ... Read more

December 6, 2019December 6, 2019

Enrollment in Phase 2 Trial of Setanaxib for IPF to Start Soon

News

Enrollment in the Phase 2 clinical trial of setanaxib (GKT831), an oral investigational treatment for idiopathic pulmonary fibrosis (IPF), will start in the coming weeks, Genkyotex announced in a ... Read more

December 5, 2019December 3, 2019

I’m Grateful to Celebrate My Fourth ‘Lungiversary’

Columns, Gonna Live My Life by Mark Koziol

Thanksgiving is over, but my feeling of gratitude remains. As a single-lung transplant recipient, the holiday is a time for me to contemplate the tremendous gift given to me ... Read more

December 5, 2019December 5, 2019

HHS Secretary Alex Azar Touts White House Efforts to Cure Rare Diseases

News

Despite skyrocketing healthcare costs, President Trump is committed to protecting the 30 million or so Americans with rare diseases and ensuring timely, affordable access to lifesaving treatments, the nation’s ... Read more

December 4, 2019December 4, 2019

BioMed X, Boehringer Ingelheim Find Potential Therapeutic Targets for IPF

News

A joint research project between BioMed X and Boehringer Ingelheim has identified a new set of potential epigenetic targets for the treatment of two chronic lung diseases, idiopathic pulmonary fibrosis (IPF) and ... Read more

December 3, 2019December 3, 2019

Esbriet Reduces Risk of Acute Flares Following Cancer Removal Surgery in IPF Patients, Study Finds

News

Treatment with Esbriet (pirfenidone) before and after cancer removal surgery reduces the risks of acute flares following the procedure in people with idiopathic pulmonary fibrosis (IPF) and lung cancer, a ... Read more

December 2, 2019November 26, 2019

Preparing for the Holiday Season as a PF Patient

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

I love Christmas and all that comes with it: the lights, music, decorations, parades, and Christmas trees. But I know that the season is a stressful and lonely time ... Read more

December 2, 2019December 2, 2019

Idebenone, an Approved Brain Stimulant, Could Prevent and Treat PF, Study Suggests

News

Idebenone, an antioxidant molecule used to treat Alzheimer’s disease and other brain-damaging conditions, prevented lung damage in a mouse model of pulmonary fibrosis (PF), a study has found. The ... Read more