August 16, 2019August 14, 2019

What I Learned About Parenting from My Mother’s Health Journey

Columns, Courage to Care - a column by Christie Patient

I don’t have children yet, but like most people, I learned nearly everything I know about parenting from my parents. I grew up watching them and learning from them. ... Read more

August 16, 2019August 16, 2019

Taking Esbriet for IPF Does Not Increase Risk of Heart Problems, Analysis Says

Esbriet, News

Taking Esbriet (pirfenidone) to manage idiopathic pulmonary fibrosis (IPF) does not increase the risk of heart problems or interfere with commonly used cardiovascular medications, an analysis found. Results of ... Read more

August 16, 2019August 16, 2019

Facts About Pulmonary Fibrosis Prognosis and Life Expectancy

August 15, 2019August 13, 2019

Moments in Time: Revisiting Old Friendships and Creating New Memories

Columns, Gonna Live My Life by Mark Koziol

As a condition of being placed on a lung transplant list, I had to show that I had social support. My wife was my main caregiver, but she would ... Read more

August 15, 2019August 13, 2019

Setting Goals Brings Me Benefits While Living with Chronic Illness

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Goal setting is an essential part of a balanced life. Regardless of whether the goals are related to fitness, finances, or learning a new skill, having targets gives you ... Read more

August 14, 2019August 14, 2019

Ofev-Sildenafil Combo May Improve Heart Health in IPF Patients with Right Heart Dysfunction, Study Suggests

News

People with idiopathic pulmonary fibrosis (IPF) and right heart dysfunction may benefit more from a therapy combining Ofev (nintedanib) with sildenafil than from Ofev alone in terms of cardiac health, according to data ... Read more

August 13, 2019August 13, 2019

Natural Product Tannic Acid Produces Anti-fibrotic Effects in IPF Models, Study Shows

News

The natural product tannic acid has anti-fibrotic effects on cultured human lung fibroblasts and in an in vivo idiopathic pulmonary fibrosis (IPF) mouse model by reducing signals from TGF-beta receptors, ... Read more

August 12, 2019August 12, 2019

IPF Cognitive Struggles: Does Disclosure Carry a Risk?

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Have you ever been in a position in which you wanted to disclose something but were worried about how it would be perceived? Were you concerned that you’d be ... Read more

August 12, 2019August 12, 2019

At-home Activity Trackers and Spirometry Devices May Aid IPF Trials, Small Study Finds

News

At-home use of wearable physical activity trackers and portable spirometry devices may offer a feasible way of evaluating people with idiopathic pulmonary fibrosis (IPF) taking part in clinical trials, ... Read more

August 9, 2019August 8, 2019

Providers Who Go the Extra Mile to Support ICU Families

Columns, Courage to Care - a column by Christie Patient

I recently spoke to Dr. Heidi Engel, the physical therapist who directed my mom’s pulmonary rehabilitation while she was in the ICU at the University of California, San Francisco. ... Read more

August 9, 2019August 9, 2019

Mutations Newly Found in Families Link Problems with Calcium Metabolism to PF

News

Mutations in two genes, S100A3 and S100A13, were found to be linked to an atypical, early onset form of pulmonary fibrosis (PF) in two families in Saudi Arabia. The newly identified gene ... Read more

August 8, 2019August 9, 2019

I’m Embracing Desensitization as a Coping Strategy

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

I was diagnosed with a fatal lung disease called idiopathic pulmonary fibrosis (IPF) three years ago. Since then, my life has been full of ups and downs — most ... Read more