October 18, 2018October 16, 2018
Living with IPF and Navigating the Changes
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
Living with any life-threatening illness is difficult and brings many changes, both to the patient and her family. Following ... Read more
October 17, 2018October 18, 2018
Researchers Discover New Targets to Inhibit Pulmonary Fibrosis
News
Researchers have uncovered an immunological mechanism that underlies fibrosis in different lung conditions, including sarcoidosis and idiopathic pulmonary fibrosis (IPF), a ... Read more
October 16, 2018October 12, 2018
Let’s Treat Ourselves with Kindness
Columns, Just Breathe...Compassionate Help for the PF Journey
A pulmonary fibrosis diagnosis is difficult, to say the least. You need kindness, not just for others, but ... Read more
October 15, 2018October 17, 2018
Pharmaxis’ LOXL2 Inhibitor Shows Positive Results in Phase 1 Trial in Healthy Volunteers
News
Pharmaxis’ first small molecule inhibitor of LOXL2 (lysyl oxidase like 2), an enzyme that promotes fibrosis in the lungs ... Read more
October 15, 2018October 11, 2018
Forming Meaningful Friendships with a Chronic Illness
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
For as long as I can remember, I’ve always loved meeting new people. My siblings and I each have ... Read more
October 12, 2018October 17, 2018
Analysis of Phase 3 Trial Data Shows Benefits of Esbriet for More Advanced IPF Patients
Esbriet, News
Treatment with Esbriet (pirfenidone) can effectively benefit patients with idiopathic pulmonary fibrosis (IPF) who have more advanced lung ... Read more
October 10, 2018October 10, 2018
Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments
News
Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal ... Read more
October 9, 2018October 15, 2018
Taking Time to Express Gratitude
Columns, Just Breathe...Compassionate Help for the PF Journey
Two years ago, I let my colleagues know that I was closing my counseling practice of 30 years due ... Read more
October 9, 2018October 9, 2018
Ofev Prevented Lung Cancer Progression in IPF Patient, Case Report Shows
News
Ofev, an approved therapy for idiopathic pulmonary fibrosis (IPF), can prevent the progression of squamous cell carcinoma in ... Read more
October 8, 2018October 11, 2018
X-Rx Completes Early Studies on X-165 for Potential IPF Treatment, Supporting IND Application
News
Studies supporting an investigational new drug (IND) application for X-165, a potential candidate for the treatment of idiopathic ... Read more
October 4, 2018October 15, 2018
A Gratitude Miniseries: September 2018
Columns, Younger than 30: Living with IPF, a column by Charlene Marshall
Ed. note: A continuation of the monthly “Gratitude Miniseries.” As September drew to a close, I was preparing this ... Read more
October 3, 2018October 8, 2018
Ofev, Sildenafil Combo Shows No Added Benefit in IPF Patients with Poor Lung Function, Study Shows
News
Combining Ofev (nintedanib, marketed by Boehringer Ingelheim) with sildenafil does not offer additional clinical benefits when compared to ... Read more

Living with any life-threatening illness is difficult and brings many changes, both to the patient and her family. Following my diagnosis of idiopathic pulmonary fibrosis (IPF) in early 2016, ... Read more

October 17, 2018October 18, 2018

Researchers Discover New Targets to Inhibit Pulmonary Fibrosis

News

Researchers have uncovered an immunological mechanism that underlies fibrosis in different lung conditions, including sarcoidosis and idiopathic pulmonary fibrosis (IPF), a study reports. In mouse models of pulmonary fibrosis (PF), the study ... Read more

October 16, 2018October 12, 2018

Let’s Treat Ourselves with Kindness

Columns, Just Breathe...Compassionate Help for the PF Journey

A pulmonary fibrosis diagnosis is difficult, to say the least. You need kindness, not just for others, but also for yourself. It helps to be compassionate with yourself during ... Read more

October 15, 2018October 17, 2018

Pharmaxis’ LOXL2 Inhibitor Shows Positive Results in Phase 1 Trial in Healthy Volunteers

News

Pharmaxis’ first small molecule inhibitor of LOXL2 (lysyl oxidase like 2), an enzyme that promotes fibrosis in the lungs of idiopathic pulmonary fibrosis (IPF) patients, was found safe and well-tolerated ... Read more

October 15, 2018October 11, 2018

Forming Meaningful Friendships with a Chronic Illness

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

For as long as I can remember, I’ve always loved meeting new people. My siblings and I each have unique talents. One of my brothers is exceptionally talented at ... Read more

October 12, 2018October 17, 2018

Analysis of Phase 3 Trial Data Shows Benefits of Esbriet for More Advanced IPF Patients

Esbriet, News

Treatment with Esbriet (pirfenidone) can effectively benefit patients with idiopathic pulmonary fibrosis (IPF) who have more advanced lung function impairment, by preventing a decline in exercise capacity and worsening ... Read more

October 10, 2018October 10, 2018

Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

News

Half a year has gone by since disgraced pharma executive Martin Shkreli was sentenced to seven years in federal prison for securities and wire fraud while heading San Diego-based ... Read more

October 9, 2018October 15, 2018

Taking Time to Express Gratitude

Columns, Just Breathe...Compassionate Help for the PF Journey

Two years ago, I let my colleagues know that I was closing my counseling practice of 30 years due to serious health concerns. A therapist I’d collaborated with in ... Read more

October 9, 2018October 9, 2018

Ofev Prevented Lung Cancer Progression in IPF Patient, Case Report Shows

News

Ofev, an approved therapy for idiopathic pulmonary fibrosis (IPF), can prevent the progression of squamous cell carcinoma in the lungs associated with IPF, a case study reports. The study, ... Read more

October 8, 2018October 11, 2018

X-Rx Completes Early Studies on X-165 for Potential IPF Treatment, Supporting IND Application

News

Studies supporting an investigational new drug (IND) application for X-165, a potential candidate for the treatment of idiopathic pulmonary fibrosis (IPF) and other fibrotic disorders, have been completed, X-Rx ... Read more

October 4, 2018October 15, 2018

A Gratitude Miniseries: September 2018

Columns, Younger than 30: Living with IPF, a column by Charlene Marshall

Ed. note: A continuation of the monthly “Gratitude Miniseries.” As September drew to a close, I was preparing this column by intending to say the month was full of ... Read more

October 3, 2018October 8, 2018

Ofev, Sildenafil Combo Shows No Added Benefit in IPF Patients with Poor Lung Function, Study Shows

News

Combining Ofev (nintedanib, marketed by Boehringer Ingelheim) with sildenafil does not offer additional clinical benefits when compared to Ofev treatment alone regarding quality of life and lung function in ... Read more

Living with IPF and Navigating the Changes