It’s Not as Cute as a Service Dog, But Please Don’t Touch My Oxygen Tank

It’s Not as Cute as a Service Dog, But Please Don’t Touch My Oxygen Tank

younger than 30

I had a frightening incident happen the other day that has left me a lot more protective of my oxygen tank, where I leave it and how often I keep an eye on it when interacting with others. Despite living with rapidly progressing idiopathic pulmonary fibrosis (IPF), I still have some good days where I am not attached to my oxygen tank and can wander around cannula-free.

Despite not needing the oxygen on those days, my tank is never far from my grasp in the event I become short of breath and need it suddenly. When that happens, I am overcome with a sense of panic (if you don’t know what not being able to breathe feels like, you’re lucky) and I reach for my tank for relief. So, you can imagine the fear I felt the other day when this experience happened and my oxygen settings had been tampered with.

I had brought it along to a work meeting, but set it aside as I began chatting with a family. After an hour of conversation, using lots of breaths to share necessary information, I felt the infamous discomfort of beginning to feel short of breath. Not yet feeling the panic, because I knew my tank was beside me, I reached for it, assuring myself that once I applied the nasal cannulas I would feel relief and be able to continue with my meeting. As I turned the regulator and began dialing my prescribed LPM (liters per minute of oxygen administration) nothing happened, to my surprise. Right on cue, panic began to set in.

Thankfully, it didn’t take much toying with my tank to realize what had happened and that likely, the little hands and curious minds of the small children in our meeting, were playing with my tank while I was speaking to their parents. Once I had my nasal cannulas secured and the oxygen being administered, I quickly felt better (as I usually do) and finished up my meeting. The parents of the children hadn’t realized what had happened; I think they just assumed that something had switched off on my tank or that I had forgotten a step in putting my oxygen on. And, was it my responsibility to correct their assumption?

This led me to think about all individuals with disabilities, especially those who use medical and/or mobile aids as part of their day. Working in the field I am in, I personally ask permission to touch a medical or mobile aid that someone might have, such as going to push their wheelchair or maneuvering their walker around something. I would rather ask if an individual needs help with their wheelchair, which is empowering, as opposed to someone assuming they need help. Or I’d rather remove the obstacles in the way as opposed to touching a walker belonging to someone.

Those things seem a bit more obvious to avoid touching as they often are being used directly to assist an individual. This also goes for service dogs, who wear a vest indicating they are on duty and not available to be petted or play. But what about our oxygen tanks? It could be argued they are doing equally supportive and important work for those of us relying on the oxygen when we need it, even if we’re not connected to the tank or cannula at that moment.

An interesting observation I have had since living with oxygen and lugging a tank everywhere is that either people are terrified of it and want nothing to do with it. Who else has been asked if it can “blow up” or “cause the oxygen to explode” if they wrongly touch a dial. The opposite of this can be that people are curious and, like this specific example, touch my tank without any concern or awareness that they could change the settings I need.

For the latter people, is there something we could say that would raise awareness about our oxygen tanks being a medical aid — a part of us — that should not be touched?

It may not be a service dog, but I would still appreciate it if you did not touch my oxygen tank.

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Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News, or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

2 comments

  1. Frank Raiker says:

    My IPF health issues
    I have an uncommon lung disease called Idiopathic Pulmonary Fibrosis (IPF). I am told only 250,000 people in the United States currently have this disease*. My world has changes dramatically since diagnosed. I had to accept my inability to work. It was a struggle to sit around the house after Thirty-three years as a Mental Health and Addiction Counselor. I miss working. Hopefully I with God’s help will find a way back to my career.

    This lung disorder has also affected my daily life in many ways. I am basically a couch potato. The loss of weight, physical ability to stand erect for more than a few minutes, climb stairs, walk distances is diminished. This is frustrating. I have a constant a stuffy dry bleeding nose and sticky phlegm in throat, spitting out Phlegm constantly especially after eating. I am not able to breath normally without 24/7 oxygen. My stomach and bowels are affected from my medications Constipation or excessive bowel movement causing rectal fissures, bleeding, burning and hemorrhoids. This too has been difficult to accept while believing for God’s Healing to manifest itself.

    My disease also darkens my mental outlook at times. I do not dwell to long on my losses or physical problems, or sink into self pity and despair. I try to keep focused on my blessings and favor with my God through His Son Jesus. According to God’s Word I am Healed. So I trust.

  2. Liwtep says:

    The Answer Charlene, is quite simple:-
    1. Have a notice saying “PLEASE DO NOT TOUCH” to leave on your cylinder.
    2. Buy a device which sends an audible sound when its touched, and speaks “THIS IS MEDICAL EQUIPMENT, PLEASE DO NOT MOVE”

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