Melting Heat and Humidity Becomes Another Hurdle

Melting Heat and Humidity Becomes Another Hurdle

younger than 30

As summer settles on most of Southern Ontario, Canada, it brings with it our first heat wave.

Normally, I love the heat. Even last year, after I received my diagnosis of idiopathic pulmonary fibrosis (IPF), I didn’t mind the summer months. This year, with significantly reduced lung function, I am finding it a challenge to breathe and be mobile, and the summer is just beginning.

The heat is causing one symptom this year that I don’t remember from previous years: exhaustion and fatigue. It’s been really obvious the past few days. I have needed a longer night’s sleep several days in a row, and I nap during my work day as well. In general, I have become more fatigued in the heat, and I am sure others can relate.

It’s bad enough having to decline social events to avoid exposure to germs that could exacerbate my pulmonary fibrosis. Now I have to turn down activities because I am tired.

I am trying to be strategic about what I participate in. I need to conserve my energy to ensure I can get through daily living. One thing I have noticed in this heat is that if I participate in something, it takes me days longer to recover than before the heat. So please understand that if you ask me to take part in something, I want to, but I am tired.

I don’t know a solution or compromise that will work when my family, friends and colleagues ask me to do things with them, and I may be unable to. I don’t want the solution to be that I can’t take part because I’m too tired. I also don’t want people to stop asking me to participate in things because of my declining lung function and fatigue. Nor do I want them to feel disappointed if I can’t do things they want me to do.

Sometimes, I can participate in social activities with friends for hours and not feel the impact right away. (It usually comes the next day.) On other days I can’t even carry my purse from the car without feeling tired. I have yet to determine what why the drastic difference from day to day.

One thing I am able to pinpoint is that my fatigue increases in excessive and prolonged heat and humidity. So don’t be surprised if you ask me to do something and I decline when it’s hot outside. Remember that I may not be able to participate, but that doesn’t mean I don’t want to.

I read an article on The Mighty the other day about how to use energy and find balance when you are chronically sick. Although I hate to admit I have a chronic disease, IPF is progressive and debilitating, so I could relate to this article. Heat makes the challenge even worse.

Not being able to do things physically drains me emotionally as well. The constant fight between my physical self wanting to do things and the realization that some activities will take an excessive amount of energy can leave my mind tired me feeling fed up.

This disease is all-encompassing, and I have a feeling my fatigue will become worse as summer progresses. Time on the beach may be one more thing IPF steals from me.

I’m feeling defeated today, although I know I am not, and I recognize that tomorrow may be easier.

I am curious to hear from you about this, because I know our disease impacts us differently. Does the heat bother you? If so, how do you minimize the impact of the heat and humidity?

***

Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

11 comments

  1. Sandy says:

    I live in Florida where we have the heat and humidity from May through September. I walk outdoors after 8 pm. I use a 4 wheel walker with a seat to rest when I tire and it also has a pouch to hold my oxygen, which I set higher than what I normally set it. I don’t walk very far, but I need it to keep my legs strong. I also do weight exercises each day (upper and lower) to keep up my strength.

  2. Carolyn Rodenbach says:

    IhaveIPF,PH,OA, DDD,FIBRO,a Gouty Artbritis.
    The increase in humidity seems to make my joints and muscles hurt,all over.If it rains or is foggy, the pain increases. Dampness, Ch!lled, cold are deadly enemies..

  3. Eileen Lewis says:

    Hi Charlene,
    Thank you for sharing about how heat affects PF patients. I did not notice it so much last year but I really have this year. I too am tired and think that the heat is a big factor especially here in the south(Alabama).I think the humidity affects shortness of breath too. I too am learning how to moderate my activities.I can’t garden in the summer any more but don’t let it bother me when the poison ivy gets into the english ivy. I am a very active person normally but am learning how far I can push myself.I love reading and short afternoon naps. Or I just sit with a cold glass of tea. I want to be active and involved but have to pick and choose.However in most ways life is very full and meaningful. if I have the blues, exercise helps.
    It sounds like you have a very reasonable, positive approach to the illness. Keep fighting and posting.

  4. Sheria Martin says:

    Thank you for sharing your frustration with fatigue. I have had IPF for three years and appreciate your willingness to talk about our disease.

    • Sandy says:

      I had a cough for years and no diagnosis from any doctor until I couldn’t get up on October 30, 2015 and my husband had to call an ambulance. Still they thought it was pneumonia. I went home with oxygen 24/7 and still am on it. My pulmonologist just prescribed a newly released antibiotic to help stave off episodes of bronchitis. It’s called azithromycin. Started it today. Keeping my fingers crossed. I also take prednisone. Esbriet didn’t work for me. Walked onight around 6 and could hardly breathe it was so humid. Have to go back to after 8 pm again. Although I get up around 6 am, I am way too slow in the mornings to go out then.

  5. Bruce R. Majka says:

    Good day Charlene,
    Thank you for this article. After fighting IPF for seven years now, I have just hit this new symptom you describe, chronic debilitating fatigue. Although the extra strain of IPF, especially on the heart has made it more likely to become fatigued, I never experienced this level until just recently. Now twice a day, from 3-5 PM and then 7-10 PM I experience a complete shut down and compelling need to sleep. I struggle with understanding the cause for this, although as you mention the heat and humidity appear to exacerbate it. I have tried to power through these episodes, tried to sleep longer at night, increase O 2 levels, drink coffee, etc, nothing appears to work.
    I welcome anything anyone can add to ways to combat this new and disturbing symptom of IPF.
    P.S. Also enjoyed your article on Let me be mad. Amen sister!

    • Sandy says:

      Bruce, I find drinking a lot of water and keeping hydrated helps me. I only have one cup of coffee in the morning. Makes me anxious and I don’t need that.

  6. I was diagnosed with IPF about a year ago after CT scans and a biopsy. One of the primary symptoms for me has always been my lack of energy and fatigue. I do feel the effects of the disease on my breathing but no where near as much as feeling that I have run out of gas!!! I share your frustration and really thank you for highlighting this element of the disease

  7. Sandra husain says:

    I was diagnosed with IPF a year ago and although we have a few hot days in the uk I managed ok with day to day living, slower but nothing I would have to cancel, bearing in mind I was about to be 70 so no late night parties. My husband and I go to Cape Town every year for our winter their summer, oh boy did I feel the difference I spent most of the time in the apartment with aircon trying to stay cool. While I have no helpful hints other than move to the UK were our winter and summer are not to different and is not so challenging for me. I would like to thank you for articulating my feelings, my husband for the first time understood how I felt in South Africa. Stay well and thank you.

  8. Ed says:

    Vaporize Marijuana and also drink a cannabis laced tea every day,..it combats the inflammation and helps improve breathing and stops the coughing fits!

  9. Sandy says:

    I don’t know why I didn’t think of this sooner, but cleaning out my dvds I came across my Leslie Sansone Walking discs. Now I can’t go at her speed anymore,or even think about doing the whole disc, but starting today and everyday I’m able, I’m going to start these easy to follow steps. I found the disc at Target years ago called WALK AWAY THE POUNDS and I’m sure you can find them on the internet.

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