The Power of Kindness in My Battle Against IPF

The Power of Kindness in My Battle Against IPF

younger than 30

One of my all-time favorite quotes about kindness is: “Everyone you meet is fighting a battle you know nothing about. Be Kind. Always.” I liked this quote, which can be traced to Scottish author Ian Maclaren, before my 2016 diagnosis of idiopathic pulmonary fibrosis (IPF).

Kindness should come naturally to us. Humans have an innate desire to feel loved, appreciated, and accepted. However, practicing kindness is not always easy. I sometimes judge others; for example, when someone cuts me off while I’m driving or moves slowly when I am in a hurry. I am working on correcting my behavior, as I know these people could be living with an invisible illness or be having a really bad day.

Following my diagnosis with IPF, which is mostly an invisible illness, I have a greater appreciation for people who are kind. However, it is easy to get sucked into negative thoughts and sadness. I “should” be able to do everything my friends can but my body won’t let me because of this disease. I feel angry with those who seem to take their health for granted by engaging in behaviors such as smoking or vaping. I feel guilty about my anger, and the cycle of sadness and negativity continues.

To keep myself thinking positively, I think about the kindness others have shown me. Thinking about these scenarios brightens my mood and inspires me to be kind to others.

Join our forums and be part of the Pulmonary Fibrosis News Community!

Following are the three scenarios that I think about on difficult days:

  • In May 2017, I experienced an exacerbation of my IPF following a bacterial infection that invaded my lungs. It was my first extended stay in a hospital’s intensive care unit. As I was leaving the hospital, I met a nurse who had taken care of me, and she gave me a smile that was full of kindness. I wrote about that smile in a previous column.
  • In October 2017, I received the anonymous gift of a portable oxygen concentrator. These machines are very expensive to buy, and there’s usually a wait to get one from a supplier. I still don’t know who donated this device (though I have my suspicions), but it has changed my life. I couldn’t be more thankful for this person’s act of kindness.
  • Three months before my diagnosis I got a dog. She is the love of my life, and I’ve written about her in previous columns. I got her on a breeding contract: The agreement was that I could take full ownership after she had two litters of puppies. My dog has been my constant companion throughout my illness, even joining me during hospital stays. As my need for her companionship has grown, I have worried about being apart from her for the eight-week breeding cycle. Recently, I received a letter from the breeder officially releasing my dog from her breeding program and transferring ownership to me. She wrote that she didn’t want to disrupt the comfort and companionship my golden retriever brings me. I will never forget her kindness because I can’t imagine my life without my dog.

Have you been touched by the kindness of others since your PF diagnosis? Continue this discussion in our PF forums.

***

Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

6 comments

  1. Patricia Quinn says:

    I read every thing I can about this desease.To me it upsets me that no one has come up with any medication that has a benefit to those of us with PF.The meds they offer are not good for all.Seems like this deease has been around for many years and we are the forgotton ones.

    • Charlene Marshall says:

      Hi Patricia,

      Thank you so much for writing to me, and voicing your concerns about feeling like we’ve been the forgotten ones… I certainly share in this concern with you. I try to put my trust in the dedicated MDs and researchers who are working to find a cure or better treatment options for IPF, but it is frustrating knowing how much we’re impacted by the terrible side effects of this disease. I sure hope there will be a medication soon that works in stopping (better yet, reversing) the scarring in our lungs. I’m keeping my fingers crossed!
      Hang in there,
      Charlene.

  2. Liz Jones says:

    My husband has IPF and I am in a quandary about what to do for him. His military time has provided a great help at this time – oxygen, walker, manual wheelchair – doctors, nurses, and technicians who care. But, he has anxiety attacks in which his eyes widen and he struggles and shakes uncontrollably because he can’t breathe. It seems to me his condition is worse each day. He struggles and is breathless going to the bathroom or moving from room to room. He is now refusing to take showers because he says it takes too much out of him. I retired last week from a job I loved because he is so important to me and our family. How have some of you overcome struggles especially the ones I mention?

    • Charlene Marshall says:

      Hi Liz,

      Thanks so much for reading my columns and contributing to the comments, although I am so sorry to hear of the struggles that your husband is experiencing with his IPF. I’m glad the military time has proved helpful with what he needs in terms of devices, equipment, oxygen and care from nurses, etc. However, I can certainly understand the anxiety that comes from living with this disease; it is really terrifying not being able to breathe. Certain activities really do take a lot out of us, but I wonder about his supplemental oxygen needs, is he getting enough / when has this last been assessed for him based on the progression of his disease? Perhaps he is not getting enough and his oxygen needs need to increase to help his fatigue and stamina a bit better? Curious to hear your thoughts on this.

      Charlene.

Leave a Comment

Your email address will not be published. Required fields are marked *