Saying ‘I’m Sick’ Could Mean Many Things. Here’s Why

Saying ‘I’m Sick’ Could Mean Many Things. Here’s Why

younger than 30

Lately, I have been taking what feels like an excessive number of sick days, both from work and from day-to-day activities. In the past couple of years, it’s taken time to accept that I must prioritize my body’s needs and slow down or rest when needed has taken time. If I don’t, my body has ways of making me do this, whether I accept it or not.

Unfortunately, over the past few weeks, I have been forced to rest more times than I’d like to admit. It feels similar to a child during a growth spurt that requires excessive sleep. The difference is that I don’t know what is causing me to need a lot of rest. I only know that I need it.

In the past few weeks, I noticed on my Fitbit sleep tracker that on some nights, I slept over 13 hours straight and still required a nap the next day. This is very unusual for me.

Ever since I was young, I have had a hard time admitting when I am sick. I vividly remember crying in elementary school, telling the teacher that I wasn’t feeling well and that I wanted to go home. I always thought it was an unusual response. It didn’t happen very often, and it wasn’t as if I could do anything about getting sick with a cold or the flu.

However, not much has changed since then, and I still don’t like admitting that I am sick. As a patient living with idiopathic pulmonary fibrosis (IPF), the inability to verbalize what “I’m sick” means for others is even more difficult.

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Living with a life-threatening lung disease means experiencing an entire gamut of symptoms, side effects, and ailments. Usually, others have a difficult time understanding when I can’t easily explain which of the many things I’m feeling caused me to need a sick day or to cancel plans.

Following are some of the symptoms I have noted lately that have required me to spend more time than usual in bed. I have tried to track when I experience them, for how long, and what alleviates them. So far, I haven’t been able to identify a pattern, and maybe it means that my IPF progression is getting worse.

  • Frequent headaches with neck pain. Because I was treated for whiplash this year following a car accident last November, this symptom shouldn’t surprise me. What is bothersome, however, is the recent increase in the frequency of my headaches and their intensity. I have come home from work, taken a narcotic pain medication, turned off all lights, and gone to sleep before the pain in my head subsides. Headaches are unusual for me and recently have caused occasional nausea and vomiting as well. I’m not sure if I am starting to develop migraines or if these headaches are weather-related.
  • Debilitating fatigue. This is a known side effect of IPF, but the difference for me lately is that I cannot fight back. I used to be able to push through it, but I can’t do that anymore. When my body says I am tired, I can’t do anything about it and need to spend time in bed or on the couch, even if it means hours of doing nothing but letting my body rest.
  • Muscle, nerve, and joint pain. I suspect this comes from being chronically under-oxygenated, but I can’t be certain. In the past few months, I’ve noticed a lot of pain in my feet, hips, and upper back muscles. Thankfully, massage therapy often alleviates this pain, but it isn’t realistic to have massage therapy each time I have this pain. Physical therapy, topical heating and cooling ointments, and stretching also have proven helpful in reducing this pain.
  • Upset stomach and nausea. This tends to happen randomly, and the two aren’t always connected. For example, recently I had a sore stomach but didn’t feel like I needed to vomit. Instead, I felt as though I had hunger pains. But I had just finished dinner, so I knew that wasn’t what it was. I never really know when I’ll end up with an upset stomach, which makes scheduling and attending social activities difficult.

Do you regularly experience these symptoms while living with IPF? Continue this discussion in our PF forums.

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Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

Thanks for stopping by my column! My name is Charlene Marshall and I was diagnosed officially with Idiopathic Pulmonary Fibrosis (IPF) on April 7 2016 after 13 months of various tests, hospitalizations and misdiagnoses, such as bronchitis and asthma. Due to my age, the specialist disclosed that he was unsure how the IPF would manifest itself in terms of progression, and whether it would be fast or slow and what the course of my illness might look like. Not much has changed since then, meaning there is still a lot that remains unknown, which is largely due to my age and how “rare” it is for someone under 30 to receive a diagnosis of IPF. That being said, a lot has changed for me in the time since diagnosis and I am looking forward to sharing some of those changes with you through this online platform, and I invite you along for the ride! Throughout this column I intend to chronicle the experience of living with an invisible, yet fatal disease as a young adult and share some stories about how IPF has impacted every aspect of my life, both good and bad, thus far. I plan on highlighting the challenges (and where I can, the positives…) that come with living with IPF and the impact on social and intimate relationships, finances, family dynamics, facing mortality, infertility, travelling, medication side effects, career goals and so much more as it arises for me as a “new” patient. I hope others’ with similar experiences will reach out as no story trumps any other, nor should any go unheard. For now, let me leave you with some personal details about who I am, outside of my IPF diagnosis. I grew up in a small town in south-western Ontario and still live within Ontario, although in a much bigger city. My favorite sport is/was underwater hockey (yes, it is a thing: look it up on YouTube), I love working with people, I work full-time in the Social Work/Social Services field, I am an avid learner filled with heaps of curiosity for the world, which lead me to start my Masters Degree in 2014. I am in the last few months of my Masters Degree and am looking forward to an upcoming trip to Australia more than I’ve looked forward to anything before. Welcome to the shambles and chaos that is my life!
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Thanks for stopping by my column! My name is Charlene Marshall and I was diagnosed officially with Idiopathic Pulmonary Fibrosis (IPF) on April 7 2016 after 13 months of various tests, hospitalizations and misdiagnoses, such as bronchitis and asthma. Due to my age, the specialist disclosed that he was unsure how the IPF would manifest itself in terms of progression, and whether it would be fast or slow and what the course of my illness might look like. Not much has changed since then, meaning there is still a lot that remains unknown, which is largely due to my age and how “rare” it is for someone under 30 to receive a diagnosis of IPF. That being said, a lot has changed for me in the time since diagnosis and I am looking forward to sharing some of those changes with you through this online platform, and I invite you along for the ride! Throughout this column I intend to chronicle the experience of living with an invisible, yet fatal disease as a young adult and share some stories about how IPF has impacted every aspect of my life, both good and bad, thus far. I plan on highlighting the challenges (and where I can, the positives…) that come with living with IPF and the impact on social and intimate relationships, finances, family dynamics, facing mortality, infertility, travelling, medication side effects, career goals and so much more as it arises for me as a “new” patient. I hope others’ with similar experiences will reach out as no story trumps any other, nor should any go unheard. For now, let me leave you with some personal details about who I am, outside of my IPF diagnosis. I grew up in a small town in south-western Ontario and still live within Ontario, although in a much bigger city. My favorite sport is/was underwater hockey (yes, it is a thing: look it up on YouTube), I love working with people, I work full-time in the Social Work/Social Services field, I am an avid learner filled with heaps of curiosity for the world, which lead me to start my Masters Degree in 2014. I am in the last few months of my Masters Degree and am looking forward to an upcoming trip to Australia more than I’ve looked forward to anything before. Welcome to the shambles and chaos that is my life!

2 comments

  1. Lorena McManus says:

    Great article Charlene! As Always. I’m sorry you’re really struggling with some symptoms. I am a retired palliative care nurse/administrator. Would you consider a consult to palliative care for pain and symptom management? I think you could really benefit and could feel a lot better. There are other meds that can be combined with opioids that can hope with neurogenic pain etc. I als know of what I speak from a patent perspective. Hang in there. Hate to hear about someone like you suffering. You’re too young and have too much to do! Lorenaq

    • Charlene Marshall says:

      Hi Lorena,

      Thanks so much for reading my columns and for reaching out via the comments. I’m really sorry we’re all brought together by this cruel disease, although with that said, I’ve met some of the most amazing people through the “IPF community”. Just wish we were together for different reasons!

      I would consider a palliative care consult for pain management and quality of life discussions. I work with children and families through trauma and grief, so I am very pro-palliative care and breaking down so many of the barriers that still surround palliative care meaning only end-of-life. That said, its funny I haven’t really considered it for my own life / experiences. I will consider this closer I think and bring it up to my transplant coordinator, thanks for the gentle “push”. You’re so kind! Hang in there, and feel free to reach out anytime 🙂

      Warmest regards,
      Charlene.

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