Self-Care Tips to Help Me Cope When Others Go Through Tough Times

Self-Care Tips to Help Me Cope When Others Go Through Tough Times

younger than 30

Any patient living with a chronic illness is familiar with the topic of self-care. It’s something that many of our medical team members, especially the allied healthcare professionals, talk to us about. But practicing self-care is not always as easy as it sounds.

It has taken me nearly three years of living with idiopathic pulmonary fibrosis (IPF) to really understand the importance of self-care. It is an ongoing learning process for me, and I certainly haven’t perfected it yet.

One of my New Year’s resolutions has been to focus more on self-care. Generally speaking, I’ve been doing a lot of this since 2019 began. My intention falls apart, however, when I learn that others are going through tough times. I have an overwhelming desire to help and support them.

This always has been something I struggle with, as compassion is one of my greatest traits according to a recent personality dimensions test I took with my colleagues. My dominant color is blue, which encompasses compassion and empathy. For more on personality dimensions, click here.

While I find it difficult to watch anyone go through tough times, I find it particularly hard to cope when those I know and love experience difficulties related to our disease. It’s even more difficult when they live far away and I can’t do much to help.

Typically, if friends who live close by are having a tough time, I switch into problem-solving mode and focus on logistical details. What do they need? How can I help? Who is taking that “shift” to be with them? This is a lot more difficult when they aren’t close.

During these times, I really need to focus on self-care and think about what I need, because feeling “lost” or being unable to do anything to help is hard.

Recently, the PF community lost a wonderful young adult who was a fierce warrior and strong advocate for all of us living with this life-threatening lung condition. She was doing so well but took a sudden turn for the worse in December. This is the cruel reality of PF: Things can change for us in an instant.

A wonderful online friend is dealing with what appears to be a rapid progression of her illness and is anxiously awaiting news of a lung transplant listing. Another is actively listed and waiting for lungs but struggling every moment to breathe, and we worry about her body maintaining such a fragile state.

These are tough experiences to share with friends, but they also are important to my ability to cope with my own illness. When things get tough, I focus on the following self-care coping tips to keep my head clear:

  • Problem-solving and focusing on logistics: If I can be present with my friends who are struggling, I tend to flip into problem-solving mode. When I can organize or support in a tangible way, I tend to cope a lot better.
  • Surrounding myself with things that bring me joy: Typically, this includes my creative hobbies or cooking and baking. Not only do these keep my mind and hands busy, but also I can focus on making something for struggling friends.
  • Feeling the emotions: Generally speaking, I let myself feel whatever emotions come to mind when dealing with tough times. This is something I practice when working with children and families, but sometimes I find it easier said than done. When someone I love is going through difficult times, I let myself feel the various emotions that they might feel, which is an important part of empathy. Whether it is sadness, anger, or fear, I try to let myself authentically feel these things for my friends and then work through them so that I don’t linger in negativity too long.
  • Staying grounded: This is important for anyone living with a life-threatening illness. Things can always be better for us, but they can always be worse, too. This gives me some perspective and helps me stay grounded and focused on what I can do as a patient with IPF.

What are some ways that you practice self-care when times are difficult for you or the people you love?

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Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

Thanks for stopping by my column! My name is Charlene Marshall and I was diagnosed officially with Idiopathic Pulmonary Fibrosis (IPF) on April 7 2016 after 13 months of various tests, hospitalizations and misdiagnoses, such as bronchitis and asthma. Due to my age, the specialist disclosed that he was unsure how the IPF would manifest itself in terms of progression, and whether it would be fast or slow and what the course of my illness might look like. Not much has changed since then, meaning there is still a lot that remains unknown, which is largely due to my age and how “rare” it is for someone under 30 to receive a diagnosis of IPF. That being said, a lot has changed for me in the time since diagnosis and I am looking forward to sharing some of those changes with you through this online platform, and I invite you along for the ride! Throughout this column I intend to chronicle the experience of living with an invisible, yet fatal disease as a young adult and share some stories about how IPF has impacted every aspect of my life, both good and bad, thus far. I plan on highlighting the challenges (and where I can, the positives…) that come with living with IPF and the impact on social and intimate relationships, finances, family dynamics, facing mortality, infertility, travelling, medication side effects, career goals and so much more as it arises for me as a “new” patient. I hope others’ with similar experiences will reach out as no story trumps any other, nor should any go unheard. For now, let me leave you with some personal details about who I am, outside of my IPF diagnosis. I grew up in a small town in south-western Ontario and still live within Ontario, although in a much bigger city. My favorite sport is/was underwater hockey (yes, it is a thing: look it up on YouTube), I love working with people, I work full-time in the Social Work/Social Services field, I am an avid learner filled with heaps of curiosity for the world, which lead me to start my Masters Degree in 2014. I am in the last few months of my Masters Degree and am looking forward to an upcoming trip to Australia more than I’ve looked forward to anything before. Welcome to the shambles and chaos that is my life!
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Thanks for stopping by my column! My name is Charlene Marshall and I was diagnosed officially with Idiopathic Pulmonary Fibrosis (IPF) on April 7 2016 after 13 months of various tests, hospitalizations and misdiagnoses, such as bronchitis and asthma. Due to my age, the specialist disclosed that he was unsure how the IPF would manifest itself in terms of progression, and whether it would be fast or slow and what the course of my illness might look like. Not much has changed since then, meaning there is still a lot that remains unknown, which is largely due to my age and how “rare” it is for someone under 30 to receive a diagnosis of IPF. That being said, a lot has changed for me in the time since diagnosis and I am looking forward to sharing some of those changes with you through this online platform, and I invite you along for the ride! Throughout this column I intend to chronicle the experience of living with an invisible, yet fatal disease as a young adult and share some stories about how IPF has impacted every aspect of my life, both good and bad, thus far. I plan on highlighting the challenges (and where I can, the positives…) that come with living with IPF and the impact on social and intimate relationships, finances, family dynamics, facing mortality, infertility, travelling, medication side effects, career goals and so much more as it arises for me as a “new” patient. I hope others’ with similar experiences will reach out as no story trumps any other, nor should any go unheard. For now, let me leave you with some personal details about who I am, outside of my IPF diagnosis. I grew up in a small town in south-western Ontario and still live within Ontario, although in a much bigger city. My favorite sport is/was underwater hockey (yes, it is a thing: look it up on YouTube), I love working with people, I work full-time in the Social Work/Social Services field, I am an avid learner filled with heaps of curiosity for the world, which lead me to start my Masters Degree in 2014. I am in the last few months of my Masters Degree and am looking forward to an upcoming trip to Australia more than I’ve looked forward to anything before. Welcome to the shambles and chaos that is my life!

5 comments

  1. Katherine says:

    This month of simply coping with IPF and increased pain w/cold temps, concentrating, I admit, on myself, I neglected to send my best friend a Valentine and she called me on it. I was astounded! Granted, she is going through a tough bout with depression and anxiety as caregiver to her husband who has Alzheimers. For the life of me I cannot recall sending her Valentines in the past and certainly not on any regular basis. I don’t even send them to my (grown) children or the grandchildren as a rule. I did send one this year to my uncle who is 92 because I had some photos from his past to enclose. My friend is into something at church called THE CURE where you don’t hold back and you tell it like it is. Last time I did that with a close friend, I never heard from her again. I am through apologizing and falling on my sword. I do call this friend every day during this difficult time almost w/o fail, and I am familiar with depression and the sensitivity is brings. Mea Culpa!

    • Charlene Marshall says:

      Hi Katherine,

      Thanks so much for reading my columns and connecting via the comments, although sorry to hear of this struggle with your friend. That is never easy, is it? I hope you were gentle on yourself despite your friends response to not receiving a Valentine. Sometimes there is more to the story – on their end – than we know, but I always say, “doesn’t mean we need to carry that”. I try to remember that reactions are based on what others are going through, often something we aren’t privy to, but regardless, what we can control is how we care for ourselves after tough comments like that. While I admire the process of being open and honest, there is also an appropriate way to approach that philosophy and the intention can’t ever be to hurt someone. Have you ever heard of “intention vs. impact”? We talk about this at my place of work all the time, and while she may not have intended to cause you harm, pain, sadness; it sounds like there is still an impact and even with the “don’t hold back, tell it like it is” attitude: people need to be held accountable for their impact, regardless of intention. Does this make sense? Sorry I went off on a bit of a rant on you. Suffice to say, prioritize taking care of you because in the end that is all we can do and we deserve it. Tread lightly with your friend, but don’t let her take advantage.

      Thinking of you!
      Charlene.

        • Charlene Marshall says:

          Thank you so much for your kind words, Debbie. I really appreciate them and hearing from anyone who reads my column. Your note was a wonderful way to start my Friday, thank you so much for lifting my spirits and connecting through the comments of my column. So glad you’re on the forums too, I look forward to getting to know you a bit better!
          Charlene.

        • Charlene Marshall says:

          Thank you so much for your kind words Debbie! I really appreciate it, and so glad you found our forums. Feel free to reach out anytime, we’re in this together and much stronger when we support one another. Sending hugs to you and wishing you nothing but the best!

          Charlene.

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