‘Five Feet Apart’ Hits Home for Patients With Pulmonary Fibrosis

‘Five Feet Apart’ Hits Home for Patients With Pulmonary Fibrosis

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Warning: Spoilers for the movie “Five Feet Apart” are contained in this story.

Since my 2016 idiopathic pulmonary fibrosis (IPF) diagnosis, I’ve had a love-hate relationship with movies about chronic illnesses.

I love how different films highlight diseases, increasing awareness for patients living with the illness in the movie.

Contrarily, I hate that Hollywood movies sometimes inaccurately depict different diseases. For the new film “Five Feet Apart,” which is centered around cystic fibrosis (CF), I am proud to share that much of what is shown in the movie is both accurate and at times painfully raw.

While cystic fibrosis is a different disease from IPF, many scenes in the movie were relatable for patients living with any interstitial lung disease (ILD), especially those who use supplemental oxygen. I am happy for the CF community, because this movie will raise awareness about the struggles they regularly face, even amid the dramatization of a love story. In my opinion, the talent of the actors and actresses in this movie were brilliant as well.

Despite crying through most of the movie, I really enjoyed this film. I know there are varying opinions on it, and many reviews will drastically differ from how I feel. However, as a patient with a lung disease, I found myself really appreciative of a film that shows others what it is like to live in hospital or with a lung disease that tethers you to an oxygen tank.

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Some scenes in the film left me feeling completely raw. My friend occasionally glanced over at me to see how I was doing, but I didn’t know it until she grabbed my hand for silent support. Many of the moments in the movie were so real, and I remember experiencing the exact same feelings and emotions as the main characters. At one point I felt that I was in the storyline myself, wanting to share coping strategies with the young female actress about something I’d also experienced during a long-term hospital admission. Below I’ve highlighted the most emotionally raw scenes of the film for me, and why my response to the movie was, “I loved it and I hated it.”

  • Missing out on activities your friends are doing. In one scene, the main character is video chatting with her friends who are at a social event. I can’t count the number of times I’ve received videos or pictures from friends who are participating in a social activity that I couldn’t attend because I was in the hospital. Events like a wedding, birthday party, or baby shower. The tears Stella (main character) cried after hanging up the video chat, despite remaining strong and supportive in front of her friends, were so real to me. I love that they showcased this side of a patient’s grief in the movie, but hate that we have to miss out on important events because of our disease.
  • A main character’s death. A sad reality of living with any lung disease is watching those around you die suddenly. Respiratory illnesses are unpredictable, especially during cold and flu season. When a main character died in the movie, other “patients” in the hospital overheard the “code blue” called to his room and went out in the hall to see what was happening. This happened to one of my friends who was admitted down the hall from me last year, and I vividly remember every emotion that passed through me when I saw the code team leaving her room looking emotionless and defeated. My heart sank and I went back to my room throwing objects off my bed and disconnecting my IV lines because I was so furious my friend just died for no reason. This was probably the most emotionally raw moment of the entire movie for me.
  • Seeing the emotions of the transplant nurse. Healthcare professionals’ perspectives are rarely captured in movies, but that wasn’t the case in “Five Feet Apart.” At one point, the supervising nurse took it upon herself to explain why it was so important to her that the two main characters followed safety protocols to remain healthy. She shared that other patients died on her watch, indicating she hadn’t done her job well enough, and she wasn’t going to let that happen again. My transplant coordinator talks all the time about her love-hate relationship with her job, and I’ve never really considered the emotions she goes through when one of us dies. I am thankful for this movie showing how painful that is, not only for other patients but for healthcare team members too.

Thank you to the producers, writers, actors, and production crew of this movie for capturing a story on such an important topic to all of us. Though I don’t have CF, I could relate so much, and I’m glad others have an understanding of CF now too.

Are there any movies that are particularly meaningful to you as an IPF/CF patient?

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Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

Thanks for stopping by my column! My name is Charlene Marshall and I was diagnosed officially with Idiopathic Pulmonary Fibrosis (IPF) on April 7 2016 after 13 months of various tests, hospitalizations and misdiagnoses, such as bronchitis and asthma. Due to my age, the specialist disclosed that he was unsure how the IPF would manifest itself in terms of progression, and whether it would be fast or slow and what the course of my illness might look like. Not much has changed since then, meaning there is still a lot that remains unknown, which is largely due to my age and how “rare” it is for someone under 30 to receive a diagnosis of IPF. That being said, a lot has changed for me in the time since diagnosis and I am looking forward to sharing some of those changes with you through this online platform, and I invite you along for the ride! Throughout this column I intend to chronicle the experience of living with an invisible, yet fatal disease as a young adult and share some stories about how IPF has impacted every aspect of my life, both good and bad, thus far. I plan on highlighting the challenges (and where I can, the positives…) that come with living with IPF and the impact on social and intimate relationships, finances, family dynamics, facing mortality, infertility, travelling, medication side effects, career goals and so much more as it arises for me as a “new” patient. I hope others’ with similar experiences will reach out as no story trumps any other, nor should any go unheard. For now, let me leave you with some personal details about who I am, outside of my IPF diagnosis. I grew up in a small town in south-western Ontario and still live within Ontario, although in a much bigger city. My favorite sport is/was underwater hockey (yes, it is a thing: look it up on YouTube), I love working with people, I work full-time in the Social Work/Social Services field, I am an avid learner filled with heaps of curiosity for the world, which lead me to start my Masters Degree in 2014. I am in the last few months of my Masters Degree and am looking forward to an upcoming trip to Australia more than I’ve looked forward to anything before. Welcome to the shambles and chaos that is my life!
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Thanks for stopping by my column! My name is Charlene Marshall and I was diagnosed officially with Idiopathic Pulmonary Fibrosis (IPF) on April 7 2016 after 13 months of various tests, hospitalizations and misdiagnoses, such as bronchitis and asthma. Due to my age, the specialist disclosed that he was unsure how the IPF would manifest itself in terms of progression, and whether it would be fast or slow and what the course of my illness might look like. Not much has changed since then, meaning there is still a lot that remains unknown, which is largely due to my age and how “rare” it is for someone under 30 to receive a diagnosis of IPF. That being said, a lot has changed for me in the time since diagnosis and I am looking forward to sharing some of those changes with you through this online platform, and I invite you along for the ride! Throughout this column I intend to chronicle the experience of living with an invisible, yet fatal disease as a young adult and share some stories about how IPF has impacted every aspect of my life, both good and bad, thus far. I plan on highlighting the challenges (and where I can, the positives…) that come with living with IPF and the impact on social and intimate relationships, finances, family dynamics, facing mortality, infertility, travelling, medication side effects, career goals and so much more as it arises for me as a “new” patient. I hope others’ with similar experiences will reach out as no story trumps any other, nor should any go unheard. For now, let me leave you with some personal details about who I am, outside of my IPF diagnosis. I grew up in a small town in south-western Ontario and still live within Ontario, although in a much bigger city. My favorite sport is/was underwater hockey (yes, it is a thing: look it up on YouTube), I love working with people, I work full-time in the Social Work/Social Services field, I am an avid learner filled with heaps of curiosity for the world, which lead me to start my Masters Degree in 2014. I am in the last few months of my Masters Degree and am looking forward to an upcoming trip to Australia more than I’ve looked forward to anything before. Welcome to the shambles and chaos that is my life!

4 comments

  1. Lydia says:

    Thanks for summarizing the movie. This is typically one that I would see but I don’t think I can handle it, now that I have IPF. My hope is that people see what living with a lung disease can be like and be increasingly sensitive to their plight.

    • Charlene Marshall says:

      Hi Lydia,

      Thanks so much for reading my columns and getting in touch via the comments. I agree with you, and wasn’t sure whether or not I could handle it either as it really brought up a lot of emotions. I am really glad that I did however, because instead of feeling sad when I left, I was happy that a movie accurately portrayed the struggles of what it is like to live with a lung disease, despite it being CF instead of IPF. It was important for me to see that others would get a better understanding of these challenges. It is an excellent movie, but I certainly understand your choice not to see it too.

      Regards,
      Charlene.

  2. Fernando says:

    I didnt know the pulmonary disease and I thank the movie for that glimpse. I was quite impressed.
    Good luck to all the people suffering from this or others incapacitive disease.

    • Charlene Marshall says:

      Hi Fernando,

      Thanks for reading my columns and reaching out via the comments. I am also glad for this movie and it showcasing a very realistic side of Cystic Fibrosis. While it is different than pulmonary fibrosis, there certainly are similarities. Goodluck to you as well!
      Kind regards,
      Charlene.

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