4 Reasons Maintaining Friendships Is Difficult When You’re Ill

4 Reasons Maintaining Friendships Is Difficult When You’re Ill

Maintaining friendships as a young adult is difficult due to time constraints imposed by the demands of young kids, a busy career, or care of aging parents. We’re all “guilty” of getting wrapped up in the daily activities of our lives. It’s not that we don’t want to spend time with our friends, it just happens that this “stage” of life is busy and so sometimes friendships unintentionally fall by the wayside. Add a chronic illness to the mix, and preserving bonds can seem next to impossible.

Following my idiopathic pulmonary fibrosis (IPF) diagnosis, my doctor told me to consider my priorities carefully. I needed to think about where I expended my physical, mental, and emotional energies, as I couldn’t keep up my previous rigorous pace. Although I put time with friends on my list of priorities, my disease and other aspects of my life have prevented me from spending as much time with them as I’d like. Recently, I reflected on why that might be.

In previous columns, and on the Pulmonary Fibrosis News Forums, I’ve discussed the breaking, bonding, and forming of my social support network. I’ve also written about how some friends flee in the wake of a life-threatening diagnosis. Sadly, I believe friendships inevitably change after diagnosis.

I’ve written about friendships changing because of other people’s reactions to my disease, either initially or as it progresses. Recently, I reflected on my actions and wondered about the aspects of my life that make maintaining friendships difficult. Like many young adults, I am a new homeowner, have pets for which I care, and a demanding career. I try to adhere to a healthy lifestyle by getting sufficient sleep and exercise and eating well. When I factor in all of the additional requirements of a chronic illness, it feels like there are not enough hours in a day. So, naturally, keeping in touch with friends falls to the bottom of my priority list.

What factors make it hard to maintain friendships when you’re chronically ill? Following is my list of the things that I’ve realized affect my ability to see my friends:

  • Fatigue: Living with a lung disease is exhausting in more ways than one. After working a full day, I am physically drained and need to let my mind and body rest. Hearing what is going on in my friends’ lives is important to me, and I want to be fully present when they share with me. However, in the evenings, I no longer have the mental stamina to be fully engaged in conversation, and I am too tired to share updates about my own life. So, instead, I try to set aside time on weekends to catch up with friends.
  • Reluctance to share “bad news”: No one likes sharing bad news, and as a patient with IPF, I’ve had my fair share of it. Sometimes when I don’t have a positive update to share, I withhold information from friends. I might avoid seeing them because I don’t want to share the latest decline in a recent pulmonary function test or a recent infection due to being immunocompromised.
  • Medical appointments: Chronic illness patients can be overwhelmed at managing a large number of medical appointments, and scheduling social visits with friends can present additional challenges. One reason I’ve not spent as much time with friends as I’d like to since my diagnosis is due to the demanding schedule of my medical appointments.
  • Finances: While spending time with friends doesn’t have to cost money, it’s nice to catch up with a friend over dinner or a fun outing. Unfortunately, many people living with IPF can no longer work due to the progression of their disease. Lack of finances can inhibit social activities with friends as a consequence of being unable to work or due to the high cost of medications.

What factors make maintaining friendships difficult for you?

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Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

Thanks for stopping by my column! My name is Charlene Marshall and I was diagnosed officially with Idiopathic Pulmonary Fibrosis (IPF) on April 7 2016 after 13 months of various tests, hospitalizations and misdiagnoses, such as bronchitis and asthma. Due to my age, the specialist disclosed that he was unsure how the IPF would manifest itself in terms of progression, and whether it would be fast or slow and what the course of my illness might look like. Not much has changed since then, meaning there is still a lot that remains unknown, which is largely due to my age and how “rare” it is for someone under 30 to receive a diagnosis of IPF. That being said, a lot has changed for me in the time since diagnosis and I am looking forward to sharing some of those changes with you through this online platform, and I invite you along for the ride! Throughout this column I intend to chronicle the experience of living with an invisible, yet fatal disease as a young adult and share some stories about how IPF has impacted every aspect of my life, both good and bad, thus far. I plan on highlighting the challenges (and where I can, the positives…) that come with living with IPF and the impact on social and intimate relationships, finances, family dynamics, facing mortality, infertility, travelling, medication side effects, career goals and so much more as it arises for me as a “new” patient. I hope others’ with similar experiences will reach out as no story trumps any other, nor should any go unheard. For now, let me leave you with some personal details about who I am, outside of my IPF diagnosis. I grew up in a small town in south-western Ontario and still live within Ontario, although in a much bigger city. My favorite sport is/was underwater hockey (yes, it is a thing: look it up on YouTube), I love working with people, I work full-time in the Social Work/Social Services field, I am an avid learner filled with heaps of curiosity for the world, which lead me to start my Masters Degree in 2014. I am in the last few months of my Masters Degree and am looking forward to an upcoming trip to Australia more than I’ve looked forward to anything before. Welcome to the shambles and chaos that is my life!
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Thanks for stopping by my column! My name is Charlene Marshall and I was diagnosed officially with Idiopathic Pulmonary Fibrosis (IPF) on April 7 2016 after 13 months of various tests, hospitalizations and misdiagnoses, such as bronchitis and asthma. Due to my age, the specialist disclosed that he was unsure how the IPF would manifest itself in terms of progression, and whether it would be fast or slow and what the course of my illness might look like. Not much has changed since then, meaning there is still a lot that remains unknown, which is largely due to my age and how “rare” it is for someone under 30 to receive a diagnosis of IPF. That being said, a lot has changed for me in the time since diagnosis and I am looking forward to sharing some of those changes with you through this online platform, and I invite you along for the ride! Throughout this column I intend to chronicle the experience of living with an invisible, yet fatal disease as a young adult and share some stories about how IPF has impacted every aspect of my life, both good and bad, thus far. I plan on highlighting the challenges (and where I can, the positives…) that come with living with IPF and the impact on social and intimate relationships, finances, family dynamics, facing mortality, infertility, travelling, medication side effects, career goals and so much more as it arises for me as a “new” patient. I hope others’ with similar experiences will reach out as no story trumps any other, nor should any go unheard. For now, let me leave you with some personal details about who I am, outside of my IPF diagnosis. I grew up in a small town in south-western Ontario and still live within Ontario, although in a much bigger city. My favorite sport is/was underwater hockey (yes, it is a thing: look it up on YouTube), I love working with people, I work full-time in the Social Work/Social Services field, I am an avid learner filled with heaps of curiosity for the world, which lead me to start my Masters Degree in 2014. I am in the last few months of my Masters Degree and am looking forward to an upcoming trip to Australia more than I’ve looked forward to anything before. Welcome to the shambles and chaos that is my life!

2 comments

  1. Ruth Edwards says:

    I tried to post this but again was denied. Would you please make sure it’s either posted for all or at least to Steve. What am I doing wrong???
    Steve
    Thank you for your reply. I did purchase and take, Serrapeptase because of your recommendation Steve and I do think it has helped. I would like to think that NAC could help with lung function and removing scar tissue. Of course when I asked my lung specialist after my 6 month breathing test this week, he said that all of these supplements are expensive, take them if you want, but it’s expensive and basically no proof that it does anything. He is always quite negative and feels that testing on mice is useless because of their systems are not similar and their’s natural rejuvenation that occurs to them.

    I’ve been watching the Rosavin and Laser Therapy links. I just did my breathing test…and I have not gained but I have not lost any lung function. He also says that it was a 1% difference and that the test has a 5% chance either way of being right or wrong. I know though that my oxygen requirements have lowered since the particulates that I got in my lungs from last years forrest fires. I spent 11 days in hospital and took quite a kick to the curb. Unfortunately…my visit to town, and we stayed over in a hotel…then the hospital the next morning. We also logged another adventure the next day. Somewhere along the way, I picked up a bug. So, now I’ve upped my prednisone from 12 mg to 35, gargling with salt water, T3, cold & sinus capsule, and then my regular meds…mycophenolate, PPI, etc. I also still have some Clear Lungs…thinking about popping a couple of them. I really don’t want to have to go to hospital for another All Inclusive stay. They usually put in IV and give me either high doses of steroids or antibiotics, depending on which one is required.

    So far tonight, I’m feeling better. It could be that I’m so medicated and have also indulged in wine with dinner…but I’m ready for bed..even if it’s so hot out that it’s making condo uncomfortably warm. Damn, I sound like a big whiner!!!

    This PF News site is such a helpful gift and the support is wonderful..
    You do a lot…thank you.
    Ruth

    • Charlene Marshall says:

      Hi Ruth,

      I see your note now, I think I just had to ‘approve it’ for some reason 🙂 Let me know if you can’t find it, and I can always post on your behalf and tag Steve for a response!
      Take care,
      Charlene.

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