A PF Patient’s Experience: Setting Goals for Better Health

A PF Patient’s Experience: Setting Goals for Better Health
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I thrive in an organized and structured environment. As a young adult, I guess I’m a creature of habit and predictability, but my parents say I’ve always been this way.

Last April, I wrote a column about the importance of routine and how the pandemic has disrupted our normal lives in many different ways. Some of us are approaching one year of working from home, and that has been an adjustment for me.

There is a plethora of literature on the mental health benefits of routine, organization, and predictability. Clutter and disarray can cause feelings of stress, fatigue, and depression. Having a routine can help combat these feelings, because it keeps our mind occupied and allows us to feel more in control. This is especially true if our regular routine includes being organized and prepared for the week.

I recently started a new job, which has been a welcome change after a prolonged period of time off. However, it’s taken some adjustment to find a routine that is conducive to performing to the best of my abilities in this new position.

As a result of an extended time at home, hospitalizations, and the recent holiday season, I fell out of my routine. Once I started working, I knew I wanted to improve my sleep habits (including a bedtime and a morning routine), take my medications consistently, and eat better.

It’s been almost a month since I began my efforts to establish a new routine and better habits, and I feel more organized and productive. I’d still like to improve in some areas, particularly my morning routine.

Eventually, I’d like to work toward getting up earlier and spending a few minutes on gentle stretching or pulmonary rehabilitation exercises. An earlier start would also allow me to sit down and enjoy a healthy breakfast and coffee before starting my day. I believe a morning routine that isn’t rushed and feels enjoyable will pave the road for a day that’s equally as enjoyable.

Despite wanting to do this, waking up earlier hasn’t been easy because I struggle with fatigue due to my lung disease. Patients living with idiopathic pulmonary fibrosis (IPF) often struggle to achieve quality sleep, so I have to keep this in mind as I push myself into a more rigid routine. While I know it will ultimately help, the process of acclimating my body to waking up earlier is further complicated by having IPF.

It’s also important to remember that new routines or habits aren’t formed quickly. It can take anywhere from 18 days to more than 250 for a new behavior to become a habit, with most people averaging around 66 days. I am still at the beginning of this time frame, as it hasn’t been three full weeks, so I need to remember that and give myself grace.

For those considering starting a new routine, or who are perhaps working toward better habits as part of a New Year’s resolution, I wanted to share some of the strategies that are working for me. Feel free to adapt them as you see fit, or share other tips that work for you in the comments below.

Write down goals and check them off

Despite living in a world of digital technology, I still thoroughly enjoy a good paper planner and to-do list. I enjoy writing out a few goals each week and physically checking them off once they’ve been accomplished. I’m not sure why it’s so enjoyable, but I’m much more likely to achieve my goals if I’ve written them down.

Reward yourself

Even if your goals are small, it takes work to accomplish them. If the tasks came naturally to you, you likely wouldn’t identify them as goals to work toward. When you work hard and achieve those goals, reward yourself. This motivates me to work a little harder.

Set small goals

Small goals spaced out over a period of time are more attainable and more likely to be achieved. I’m setting my alarm 15 minutes earlier each week to change the time I wake up in the morning, and will eventually reach my desired goal. This allows my body to adjust slowly, and there’s only a small change happening each week.

Share your goals with friends

This helps with accountability. It’s nice to know that others are aware of your goals and can ask or check in on how they’re going. When I’m accountable to other people, I’m more likely to work harder to achieve my goals.

***

Note: Pulmonary Fibrosis News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Pulmonary Fibrosis News or its parent company, BioNews, and are intended to spark discussion about issues pertaining to pulmonary fibrosis.

Charlene is a fiercely independent 30-something woman who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.
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Charlene is a fiercely independent 30-something woman who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.
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6 comments

  1. Elizabeth Gail lyon says:

    This is the first time I’ve read you news letter. I find it very hard to find anyone in Western Australia( where I live. ) that has ever heard of IPF
    Even my GP. I had to tell him about it when I was first diagnosed
    Anyway I’m looking forward to receiving anything any one can send me.
    I am on Nintedanib and have problems with some of the side effects. Weight loss, nausea, diarrhoea and itchy scalp these side effects come and go sometimes all at once and sometimes the odd one for a few days then some thing takes over. Any ideas on what to eat and what to stay away from

    • Charlene Marshall says:

      Hi Elizabeth,

      Thanks for reading my column and reaching out via the comments. I love Western Australia, and can’t wait to get back to your beautiful part of the world once COVID is behind us!

      Sorry to hear you’re struggling to find people, including your GP, who are familiar with IPF. I find one of the most helpful sources of information is through other patients. Are you part of our forums yet? That is an excellent way to obtain information, ask questions and get support from other patients. Side effects of Ofev is a popular topic of discussion! You can join the forums here if interested:https://pulmonaryfibrosisnews.com/forums/

      Let me know if this helps!
      Charlene.

  2. Suzanne says:

    I so admire how well you live your life and am glad you share some of it with us! I too, at age 70, still write down goals and love ticking them off as I progress. It gives me such a sense of accomplishment during times like these when the outside world is a bit too far away.

    I am an early riser still, even though I retired over five years ago but I love the sense of peace in the morning as I drink my coffee and plan my day. Thanks for sharing.

    • Charlene Marshall says:

      Hi Suzanne,

      So nice to hear from you, thanks for reading my columns and reaching out via the comments. I appreciate your kind words, and glad some of my content resonated with you. I also love checking things off as a progress through some of my goals! Like you, it gives me a sense of accomplishment and some things to focus on. Thanks for sharing your thoughts.
      Charlene.

  3. Richard Phillips says:

    Hey Charlene, I read your post all the time. I cannot image being
    diagnosed at early age you. I am 75 years years and was diagnosed
    at age 70. I have excellent Doctors at the VA here in Gainesville Florida
    My Honey and I will be celebrating 49 years this summer. She has been
    my strength the last 5 years and that is such a blessing. Anyway I find your
    post today to be very encouraging. I worked at the US Postal Service for
    39 years and was used to getting up at 5am all those years. After I
    retired I continued that for several years. I now have found myself remaining
    In until 9 to 930 and I fine myself not being as productive during the day
    as I had when getting up at the earlier hour. So maybe you thoughts today
    will kickstart me getting started earlier. So thinks for a new plan.

    • Charlene Marshall says:

      Hi Richard,

      So nice to hear from you, and thanks so much for your kind and supportive words! I’m thrilled to hear you have such wonderful doctors, and that your wife has been such strength and support to you… sounds like you are blessed and surrounded by much love 🙂
      Yes, like you, when I slept in later (even if my body needed it), I wasn’t as productive as I would be getting up relatively early. I’m finding now that my body is in a routine and that I have much healthier sleeping habits. I don’t love getting up early on the weekends, because my body is just used to that now, but it still makes for a productive day which is nice. Hope this helps 🙂
      Charlene.

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