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Why I track changes to my post-transplant medications

After my mid-May clinic visit, I made my 130th medication change since my bilateral lung transplant in July 2021. Each week I fill my pill boxes with 17 medications. Another 17 have come out of rotation since my transplant. Following my diagnosis of idiopathic pulmonary fibrosis in January…

It’s important to give myself grace when I feel exhausted

Disrupting the rhythm of day-to-day life with pulmonary fibrosis comes at a cost. When I was diagnosed with idiopathic pulmonary fibrosis (IPF) in January 2017, my medications changed dramatically. I went from taking only Zyrtec (cetirizine hydrochloride) for seasonal allergies to requiring multiple meds that…

How my medical team helped calm my anxiety before a procedure

I recently underwent a bronchoscopy and bronchoalveolar lavage. While I was confident that I was under the care of competent professionals and trusted that the procedure would be conducted efficiently, I experienced a brief moment of apprehension and unease just before it. A bronchoscopy allows doctors to view your airways…

Good things happen on the way to the forums

Have you discovered the Pulmonary Fibrosis News Forums yet? Think of them as a virtual café where you can stop in and read a couple of items from the discussion areas, comment on questions from others, or pose a question to the group. Each time a new member joins,…

And with the advent of spring comes a Halloween party

One of the lessons idiopathic pulmonary fibrosis (IPF) has taught me is that not everything will go as planned. For that reason, this past weekend we celebrated Halloween and One-Half (which we call HH). Flexibility is important to everyone on this journey. Let me explain. Before my IPF…