Living with IPF — a column by Charlene Marshall

Charlene is a fiercely independent 30-something year-old who can’t sit still. She loves coffee, wine tasting, playing with her dog, and spending time on the beach with her family. She’s a lover of all things travel, and never passes up an opportunity for a dip in the ocean! A proud Canadian, Charlene was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016 after 13 months of investigation into sudden shortness of breath, a chronic cough, and unusual fatigue. IPF has forced her to slow down, but she’s slowly learning the value of quality versus quantity in everything she does.

It’s Time to Stop Stigmatizing the IPF Cough

The dry, persistent cough associated with idiopathic pulmonary fibrosis (IPF) is arguably the most difficult symptom of this life-threatening lung disease. Pulmonary fibrosis is defined simply as scarring in the lung, which always is progressive in patients with IPF. Unfortunately, there is nothing simple about this disease, and the scarring…

I’m Taking Medical Leave to Prioritize My Mental Health

I have always advocated for good mental health and promoted the importance of self-care. I preach regularly about this to friends, family, colleagues, and other patients with idiopathic pulmonary fibrosis (IPF). Since being diagnosed with this life-threatening lung disease, my physical health has been a priority. I do…

Recovering from an Acute Health Setback Is Challenging

Many Pulmonary Fibrosis News readers know that during the last few months, I have had several acute illnesses. As a patient living with idiopathic pulmonary fibrosis (IPF), a life-threatening lung disease, I ended up quite sick as a result. Since mid-November, I have been recovering from pneumonia, influenza A, strep…

How I Manage My Energy Reserves with Pulmonary Fibrosis

Learning how to balance personal tasks with my health needs has been a difficult lesson since my diagnosis of idiopathic pulmonary fibrosis (IPF). It’s something I have not yet mastered. Previously, I sought recommendations from my healthcare team about how to do this better. They encouraged me to think of…

I Have COVID-19. Here’s What Happened

I am taking a deep breath as I announce to my beloved online community the following: I have COVID-19. I also have idiopathic pulmonary fibrosis (IPF). Until now, I thought this combination would be fatal, but I am here to tell you that this isn’t necessarily true. I’m a fairly…

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