The federal transportation mask mandate has been extended through May 3. The city of Philadelphia has reinstated mask requirements in public indoor settings. People in the U.K. are watching the spread of a new recombinant COVID-19 variant. The Chinese government has reportedly implemented either full or partial lockdowns in…
Columns
I spent a lot of time crying last week, but for a positive reason. Idiopathic pulmonary fibrosis (IPF), a cruel and life-threatening lung disease I was diagnosed with in 2016, has often been the reason for my tears. It is challenging to live with a condition that causes debilitating…
Every day in my post-transplant world begins with morning doses and ends with evening doses of medication. I also take doses in between, totaling 33–34 pills a day. Medication management is central in the life of a transplant recipient. I received a bilateral lung transplant on this past…
Laughter brings people together. It can lead to positive emotional changes, especially when you’re having a rough day. It can also boost the immune system, which enables our body to fight infections. Laughter can help us feel relaxed and vibrant and make our spirits soar. Chronic illness can trigger…
The Decision That Saved My Life
It was July 9, 2021, at 9 a.m. NBC’s “Today” show was on television in our house that morning. I was in my home office going through my morning routine while my wife, Susan, was downstairs in her home office. When my cellphone rang, I recognized the number as the…
Many chronic illness patients experience brain fog. Those living with idiopathic pulmonary fibrosis (IPF), a progressive and life-threatening lung condition, are no exception. Due to being chronically under-oxygenated, especially as the disease progresses, many IPF patients find their brain fog prohibitive to important aspects of their life, such as excelling…
On Jan. 31, 2017, Dr. Steven Nathan, a pulmonary disease expert, sat on a stool in a clinic room across from my wife, Susan, and me, and confirmed my diagnosis of idiopathic pulmonary fibrosis (IPF). The gravity of my diagnosis hit Susan especially hard, to the point where every…
One of my biggest fears is being a nuisance to others. As much as possible, I try not to rely on anyone and have learned to become stubbornly independent. This is why living with idiopathic pulmonary fibrosis (IPF), a debilitating and life-threatening lung disease, has been so hard on me:…
This is not easy to talk about. I don’t even want to discuss it with my husband. I already feel awkward being intimate while wearing a nasal cannula and don’t want to add another unsexy health issue. My husband and I have always had a strong attraction to each other.
IPF Didn’t Change My Identity
The word “identity,” which refers to a person’s “distinguishing character or personality,” according to Merriam-Webster, may sound simple to understand, but it’s actually often confused with other terms. Before you read any further, take a moment to think about your own identity. When you have a description in mind, please…
Your PF Community
Recommended Posts
- With FDA hold lifted, IPF clinical trial of LTI-03 begins dosing patients
- How we manage the long commute to my IPF doctor appointments
- In preparing for emergencies, we’re using technology to our advantage
- US, EU regulators name deupirfenidone an orphan drug for treating IPF
- This month is our time to raise awareness about rare diseases
