Hello, I’m the Emotional Support Daughter
I was finally at that mature stage in life when you go to beer festivals with your mother. (Oh, that’s not a thing?) On a windy fall day in October 2016, my mom, Diana, and I dressed up as pirates and got…
I was finally at that mature stage in life when you go to beer festivals with your mother. (Oh, that’s not a thing?) On a windy fall day in October 2016, my mom, Diana, and I dressed up as pirates and got…
We moved out of our house today. Tomorrow, my husband, Jonny, our two pets, and I will board a plane for a new life in a new place. We are leaving Washington state behind for good. While I am sad to leave my friends, closing this chapter feels like a…
I recently celebrated another birthday, my fourth since being diagnosed with idiopathic pulmonary fibrosis (IPF). Prior to adding “rare disease patient” to my list of personal identities, I never cared much about birthdays. Now, I embrace them and enjoy celebrating the year that has passed and looking forward to…
I have always been uplifted and inspired by stories of hope, resilience, and people overcoming challenges. I would argue that many others feel the same way, because as humans, we all crave connection with one another, and stories are powerful tools that can unite us. In our current global health…
Five years ago, every change in my health status or that of a loved one had the potential to become a catastrophe in my mind. Learning that a loved one was unwell used to send me into a weeks-long obsessive panic. I would get freaked out by what…
The words “palliative care” often frighten those of us living with a life-threatening illness. This is because the term historically has been associated with end-of-life care due to its link with hospice care. But the two terms were formally separated in 1990, when the World Health Organization officially recognized palliative…
Even in normal times, holidays can be a huge vector for illness. Viruses that thrive during the colder months, such as influenza, can cause serious problems for those with compromised immune systems or poor pulmonary function. This year, with the novel coronavirus, the…
Learning to use supplemental oxygen as a young adult was arguably the hardest part of my idiopathic pulmonary fibrosis (IPF) diagnosis. My life changed once I required the help of a plastic tube with two prongs up my nose to complete basic tasks that most people take for…
I have never met a cohort of people more resilient than children. I am reminded of this every day in my career, as I am privileged to walk alongside families facing hardships and discuss with parents and caregivers how to help their children through difficult times. As a trained therapist,…
Earlier this month, I wrote a column about mental health and therapy options available during the pandemic. Hopefully, I made a strong case for giving therapy a try if you have been hesitant. I will always encourage people to try it out, but I…
Get regular updates to your inbox.