As a columnist for Bionews, I try to write about a variety of topics pertaining to patients living with idiopathic pulmonary fibrosis (IPF), even those that are taboo or difficult to talk about. Not only is this an expectation of columnists, it also can illuminate issues that patients may…
Columns
On a beautiful Thursday afternoon late last May, my partner and I took the dogs swimming at our secret spot at a nearby reservoir. A sailboat gliding across the water made me reminisce about sailing in the San Francisco Bay while growing up. The first…
Many have noted that the recent holiday season was difficult due to the pandemic, as large family gatherings were discouraged. In some places, Christmas was canceled altogether. Two years ago, I wrote about the difficulty of holiday seasons for patients with idiopathic pulmonary fibrosis (IPF) due to exhaustion, and…
This holiday season will be far different from previous ones. Because we are still in the midst of a global health crisis that won’t be resolved by Christmas, families must make difficult decisions about how to celebrate the holiday season this year. As a Canadian, I haven’t paid close attention…
I was finally at that mature stage in life when you go to beer festivals with your mother. (Oh, that’s not a thing?) On a windy fall day in October 2016, my mom, Diana, and I dressed up as pirates and got…
We moved out of our house today. Tomorrow, my husband, Jonny, our two pets, and I will board a plane for a new life in a new place. We are leaving Washington state behind for good. While I am sad to leave my friends, closing this chapter feels like a…
I recently celebrated another birthday, my fourth since being diagnosed with idiopathic pulmonary fibrosis (IPF). Prior to adding “rare disease patient” to my list of personal identities, I never cared much about birthdays. Now, I embrace them and enjoy celebrating the year that has passed and looking forward to…
I have always been uplifted and inspired by stories of hope, resilience, and people overcoming challenges. I would argue that many others feel the same way, because as humans, we all crave connection with one another, and stories are powerful tools that can unite us. In our current global health…
Five years ago, every change in my health status or that of a loved one had the potential to become a catastrophe in my mind. Learning that a loved one was unwell used to send me into a weeks-long obsessive panic. I would get freaked out by what…
The words “palliative care” often frighten those of us living with a life-threatening illness. This is because the term historically has been associated with end-of-life care due to its link with hospice care. But the two terms were formally separated in 1990, when the World Health Organization officially recognized palliative…
