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Receiving a pulmonary fibrosis diagnosis is a life-changing event. Accepting this new reality may initially seem impossible. There are so many new things to consider that never were on the radar before they suddenly became important. In addition to finding your footing in the present, you must…

At some point in everyone’s lives, we feel overwhelmed by the pressure to perform, whether it’s getting good grades at school, excelling at playing an instrument, or receiving a promotion at work. Many of these are normal pressures one expects throughout their lives. However, patients with idiopathic pulmonary fibrosis (IPF),…

The world must learn to address our widespread anxiety about the ongoing health crisis. As a patient living with idiopathic pulmonary fibrosis (IPF), a life-threatening lung disease that makes me increasingly vulnerable to respiratory infections, I’m familiar with this anxiety. But life must continue, and it’s necessary to find a…

I’ve been going through a second (Third? Fourth?) wave of grief for all things pre-pandemic. I am still mourning things that once brought me joy but are currently off-limits — rugby, concerts, being a wedding photographer, and date night out, to name a few things. I’m still hurting…

During a video call with pulmonary fibrosis (PF) advocates last week, I was informed that the U.S. Eastern Seaboard faced some terrible weather. Severe thunderstorms left many without power for days. While this is inconvenient, a prolonged loss of power can be detrimental to the health of those requiring…

Have you ever suddenly realized you are part of something special? This happened to me today during a video call with other members of the Bionews Insights (BNI) team. BNI is a relatively new division of our company, Bionews, focused on market research. The team is small, but this…

Two weeks after my mom, Holly’s, double-lung transplant, she was discharged from the hospital. Although she was weak, she was walking, talking, eating, and, best of all, breathing on her own. After three months on a ventilator, the transplant brought her back to life.

The dry, persistent cough associated with idiopathic pulmonary fibrosis (IPF) is arguably the most difficult symptom of this life-threatening lung disease. Pulmonary fibrosis is defined simply as scarring in the lung, which always is progressive in patients with IPF. Unfortunately, there is nothing simple about this disease, and the scarring…

As a person living with idiopathic pulmonary fibrosis (IPF), a chronic respiratory condition characterized by progressive scarring of the lungs and reduced oxygen, I’ve been wearing a mask for years in public places. Learning to wear a mask to protect my now-compromised lungs was difficult for me, so I…

The correct way to talk about lung transplantation in relation to pulmonary fibrosis is to call it a “treatment.” I learned this early in my caregiving journey through a combination of education from my mom’s medical team and a few not-so-gentle comments from strangers when, in…