Columns

Struggling Back into My Exercise Routine

Over a month ago, I returned from a three-week vacation to Europe. My wife and I were active every day of the trip. Most of our physical activity consisted of walking, but we also went swimming when we had the opportunity. We established a routine in each country we…

Pondering the Bigger Picture in Life

Do you ever wonder what your bigger picture looks like and what life lessons you’re meant to learn? I am aware that this is a very philosophical question to open a column with, but I can’t help but wonder about it after being diagnosed with a fatal lung disease. Since…

I’m a Control Freak Caregiver

Last week, I talked about how caring for my mother, Holly, before and after her double-lung transplant helped prepare me for parenthood. As an only child, I hadn’t yet had the opportunity to care for someone in such a comprehensive way. I learned a lot about myself and how…

I Use Humor as Part of My Coping Strategy with IPF

Learning to cope with a chronic illness is an ongoing process — and never easy. My entire world was flipped upside down when I was diagnosed with idiopathic pulmonary fibrosis (IPF) in April 2016. I didn’t know anything about interstitial lung diseases and felt bitter that I had to…

Sometimes My Health Condition Dictates My Social Plans

I’ve spent a lot of time reflecting these last few weeks. I don’t know why — I haven’t hit any special milestones such as a birthday or diagnosis anniversary. But I’ve been thinking about the adversity I’ve faced since my diagnosis with idiopathic pulmonary fibrosis (IPF) as…

IPF Cognitive Struggles: Does Disclosure Carry a Risk?

Have you ever been in a position in which you wanted to disclose something but were worried about how it would be perceived? Were you concerned that you’d be treated differently as a result of the disclosure? Unfortunately, I’ve been in this position recently, as I continue to navigate the…

Providers Who Go the Extra Mile to Support ICU Families

I recently spoke to Dr. Heidi Engel, the physical therapist who directed my mom’s pulmonary rehabilitation while she was in the ICU at the University of California, San Francisco. We discussed ICU relationships and how providers can better support family members who are experiencing the trauma of having…