I’ve been involved in equity issues for most of my adult life and have been an advocate for the rare disease community for decades. In the biblical story of David and Goliath in 1 Samuel 17, David had no intention of shying away from Goliath. Neither do I.
Each month, Brad Dell, the director of community content at Bionews, the parent company of this website, curates a list of special days of recognition ranging from the whimsical to causes that have special meaning to both individuals and entire communities. From the whimsical side of the December list,…
When people first think about disease or disability, they usually go to the physical symptoms — understandably, since they’re the most visible. But a chronic illness can affect all aspects of life. The emotional, social, mental, and financial implications can be grueling for patients, too. As a patient diagnosed…
Have you seen the Apple TV+ series “Ted Lasso“? In it, Lasso is a fictional U.S. football coach who was recruited to manage a soccer club in the U.K. He was recruited because he knew nothing of European football. The club’s owner, Rebecca Welton, wanted the team to…
This column is my 100th for Pulmonary Fibrosis News. Thank you for allowing me to share my journey with you every week. I’ve been humbled by so many of you who feel comfortable sharing your stories with me and other readers. I’ve recently returned from the Pulmonary Fibrosis…
As patients, it’s crucial to know our bodies and the care they need. Understanding the complex ways that a chronic condition like pulmonary fibrosis may affect us over time, as well as the options available to treat and manage symptoms, is important for long-term quality of life.
My mother passed away in the final hours of Thanksgiving Day three years ago. Just a week before that, I lost my stepsister, too. Understandably, it was a time of deep loss for me. At the time, COVID-19 was spreading at an alarming rate, so, like many others, I…
Grief is one of the more complex emotions we experience. In my practice as a therapist, I regularly support people who are grieving, and I have a variety of therapeutic ways to respond to someone who is processing loss. The most common strategy is to validate grief’s myriad effects on…
Veterans Day is approaching on Nov. 11, and most of us know someone who served in the military. For this column, I’d like to honor someone who left behind some promising words of the highest degree. During a recent conversation, the person I was chatting with brought up my…
Early last week, the temperature here at Lake Anna, Virginia, was in the mid-80s, which was uncharacteristic for an October afternoon. By the end of the week, the highs were barely above 50 F, and frost would greet the morning sun. I started each day with a sense of awe…
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