Covid-19

December 9, 2020December 14, 2020

UK Survey Highlights ‘Unrelenting’ COVID-19 Impact on PF Community

Covid-19, News

The global COVID-19 pandemic has had a negative local impact on healthcare for most people in the U.K. with pulmonary fibrosis (PF), who have seen their medical appointments canceled, their ... Read more

November 23, 2020December 1, 2020

1st Patient Enrolled in Trial Testing Ofev on Post-COVID-19 PF

Covid-19, News

The first patient has enrolled in a clinical trial to understand the effect of Ofev (nindetanib) on adults who developed pulmonary fibrosis (PF) following acute lung injury from COVID-19 infection. ... Read more

August 5, 2020August 5, 2020

Free Online ‘Bootcamp’ Aims to Help Those With Lingering COVID-19 Effects

Covid-19, News

To help people experiencing the lingering effects of coronavirus infection, the Pulmonary Wellness Foundation (PWF) has launched a free online rehabilitation and recovery program called COVID Bootcamp 101. In addition ... Read more

July 16, 2020July 13, 2020

The Mask Controversy Is Difficult to Hear as a Chronically Ill Patient

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

As a person living with idiopathic pulmonary fibrosis (IPF), a chronic respiratory condition characterized by progressive scarring of the lungs and reduced oxygen, I’ve been wearing a mask for years ... Read more

July 9, 2020July 13, 2020

As a Chronically Ill Patient, Lifting COVID-19 Restrictions Scares Me

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

As parts of the world begin to partially open up again amid the COVID-19 pandemic, I can’t help but feel fearful and anxious. Those of us with chronic respiratory illnesses ... Read more

July 8, 2020July 13, 2020

Algernon Begins Patient Screening for Phase 2 Trial of NP-120 for IPF, Chronic Cough

Covid-19, News

Algernon Pharmaceuticals has begun screening patients for its Phase 2 clinical trial investigating its repurposed compound NP-120 (ifenprodil) for the treatment of idiopathic pulmonary fibrosis (IPF) and associated chronic cough. The study ... Read more

July 2, 2020July 1, 2020

I’m Taking Medical Leave to Prioritize My Mental Health

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

I have always advocated for good mental health and promoted the importance of self-care. I preach regularly about this to friends, family, colleagues, and other patients with idiopathic pulmonary fibrosis ... Read more

June 25, 2020July 1, 2020

A Guide to Items Pulmonary Fibrosis Patients Pack for Trips

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

As I continue to recover from an acute health setback I wrote about earlier this month, I’ve been seeking ways to prioritize and improve my mental health. While I’m not completely ... Read more

June 19, 2020July 1, 2020

Mourning the Deaths That Can’t Be Counted

Columns, Courage to Care - a column by Christie Patient, Covid-19

There is a phenomenon in psychology known as “lost possible selves.” Possible selves are the heroes in our life story that we create within our inner narrative. They are made ... Read more

June 19, 2020July 1, 2020

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Covid-19, News, syndicated

The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those with rare diseases during the COVID-19 pandemic, the organization recently announced. The grants will support ... Read more