Covid-19

August 5, 2020August 5, 2020

Free Online ‘Bootcamp’ Aims to Help Those With Lingering COVID-19 Effects

Covid-19, News

To help people experiencing the lingering effects of coronavirus infection, the Pulmonary Wellness Foundation (PWF) has launched a free online rehabilitation and recovery program called COVID Bootcamp 101. In ... Read more

July 16, 2020July 13, 2020

The Mask Controversy Is Difficult to Hear as a Chronically Ill Patient

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

As a person living with idiopathic pulmonary fibrosis (IPF), a chronic respiratory condition characterized by progressive scarring of the lungs and reduced oxygen, I’ve been wearing a mask for ... Read more

July 9, 2020July 13, 2020

As a Chronically Ill Patient, Lifting COVID-19 Restrictions Scares Me

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

As parts of the world begin to partially open up again amid the COVID-19 pandemic, I can’t help but feel fearful and anxious. Those of us with chronic respiratory ... Read more

July 8, 2020July 13, 2020

Algernon Begins Patient Screening for Phase 2 Trial of NP-120 for IPF, Chronic Cough

Covid-19, News

Algernon Pharmaceuticals has begun screening patients for its Phase 2 clinical trial investigating its repurposed compound NP-120 (ifenprodil) for the treatment of idiopathic pulmonary fibrosis (IPF) and associated chronic cough. The ... Read more

July 2, 2020July 1, 2020

I’m Taking Medical Leave to Prioritize My Mental Health

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

I have always advocated for good mental health and promoted the importance of self-care. I preach regularly about this to friends, family, colleagues, and other patients with idiopathic pulmonary ... Read more

June 25, 2020July 1, 2020

A Guide to Items Pulmonary Fibrosis Patients Pack for Trips

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

As I continue to recover from an acute health setback I wrote about earlier this month, I’ve been seeking ways to prioritize and improve my mental health. While I’m not ... Read more

June 19, 2020July 1, 2020

Mourning the Deaths That Can’t Be Counted

Columns, Courage to Care - a column by Christie Patient, Covid-19

There is a phenomenon in psychology known as “lost possible selves.” Possible selves are the heroes in our life story that we create within our inner narrative. They are ... Read more

June 19, 2020July 1, 2020

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Covid-19, News, syndicated

The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those with rare diseases during the COVID-19 pandemic, the organization recently announced. The grants will ... Read more

June 11, 2020July 1, 2020

Recovering from an Acute Health Setback Is Challenging

Columns, Covid-19, Younger than 30: Living with IPF, a column by Charlene Marshall

Many Pulmonary Fibrosis News readers know that during the last few months, I have had several acute illnesses. As a patient living with idiopathic pulmonary fibrosis (IPF), a life-threatening ... Read more

June 10, 2020July 1, 2020

Coalition Will Address Racial Disparities in Rare Disease Communities

Covid-19, News

The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on reducing racial disparities in the rare disease community. Getting a timely and accurate diagnosis ... Read more

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