My name is Michael Morale. As director of multichannel content for Bionews Services, my job is to bring engaging multimedia content to all of our rare disease communities. I would like to introduce some of the resources available to our Pulmonary Fibrosis News forum members, as well…
Social Clips
When people refer to a “support network” that surrounds someone with a life-threatening illness, you usually think of close friends or family members. In the past, you would rarely think of complete strangers — however, this has certainly changed in recent years. The benefit of belonging to an online support…
Before you can access the groups and discussions in our new Pulmonary Fibrosis News forums, you’ll need to sign up and create a profile. To do this, go to the Forums page and click register; you’ll then be prompted to enter your name, age and whether you are a…
https://vimeo.com/162782590 In this photograph montage from Jason T. Beck called Celebrating Ricky Miller, we get a glimpse of the life of Ricky from Akron, Ohio, who battled idiopathic pulmonary fibrosis, a chronic condition that causes scarring in the lung tissue. MORE: Why we shouldn’t stop raising awareness…
There are a plethora of benefits for patients using online social media platforms. They help members of the community connect, and share and receive information about all aspects of the disease. Online social media platforms have a similar preface but do have differences in how and why they operate,…
Did you know that pulmonary fibrosis takes as many lives as breast cancer or prostate cancer? However, unlike breast and prostate cancer, there is no remission and treatment can only ease the symptoms. Around 40,000 people die each year from pulmonary fibrosis in the U.S. yet very few people…
For many people, using mindfulness as a means to eliminate or reduce stress is a new concept. It seems as though the importance of mindfulness is only now being promoted across health care, literature, social media and through holistic wellness advocates. There are now wellness centers attached to medical facilities, such…
This video from Adam Karm titled “The Best Mom in the World” is all about the Packer family. Thirty-three-year-old Stephanie Packer was diagnosed with diffuse scleroderma in 2012 and now, as a result, suffers from pulmonary fibrosis. MORE: How to better manage your pulmonary fibrosis…
For most people, a new year brings new opportunities and often, a strong desire to bring on changes and try to achieve new goals. Some make those goals about physical changes, while others might look at social goals. Some may choose mental or emotional health improvements, such as striving for…
Managing a chronic illness can be difficult. There are many different medications to take (often at different times), appointments to remember, symptoms to keep track of, and lots of information to absorb. Thankfully, living in a digital age means that there are numerous mobile apps that can help you…
