Achalasia and Lung Transplantation
When I began the evaluation process for a lung transplant, I was almost assured I would be placed on the transplant list. However, whether I received a double or single lung transplant would remain in doubt until all testing was complete. The evaluation process was an overwhelming experience. I worried because I also have auto-immune hemolytic anemia and a rare blood type; B-. These conditions did not affect whether or not I would be placed on the list.
After I completed the manometry test, it was discovered I had a low grade achalasia, which is an esophageal motility disorder, however, I was asymptomatic and didn’t feel like there was anything wrong with me. I would not be approved for a double lung transplant, but I would be approved for a single lung transplant. I immediately began to search for any professional articles comparing the life expectancy of these two types transplants.
An article was published as I was going through the evaluation process. I derived questions for my transplant team based on the article and my own case. My transplant team assured me that I was more of an anomaly because of my age and my overall fitness. I was worried how only having one functional lung would affect my oxygen saturation. Would I be able to function without supplemental oxygen? Would I be able to continue my normal activities as before IPF invaded my body? Could I expect the same life expectancy as if I had a double lung transplant?
I was very fortunate to be listed but I was anxious. Many transplant centers deny patients who suffer from achalasia. I was grateful to be accepted and receive my second chance at life.
I am curious to know have any of our forum members been diagnosed with achalasia or an esophageal motility disorder.
If there was a diagnosis and were being evaluated for transplant; How did this affect your transplant listing?
I have questions on a word document pertaining to the article and my case. I would be happy to send upon request.
Log in to reply.