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Advocacy during PF awareness month
September is an important month to many in our forums community as it marks Pulmonary Fibrosis Awareness Month. When I was diagnosed with IPF in April 2016, I was told this disease was rare, and it is still classified as a rare disease according to the National Organization for Rare Disorders (NORD). Despite it being rare, PF Awareness Month makes living with this disease feel less isolating and lonely.
PF Awareness Month often brings solidarity to those impacted by all forms of PF, including caregivers, and helps illuminate the difficulties of this disease for the community in general. As someone living with IPF, September brings me a lot of hope with the awareness it brings to our disease.
How do you plan on celebrating PF Awareness Month this September? We’d love to hear from you!
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