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BMS986-207
Hi everyone; I am 72 year old , I have pulm fibrosis diagnosed 3 yrs ago.I was on Ofev 150 mg twice daily, but now cut to 100 mg with less side effects. Recently I enrolled in BMS 982-207 I am on 120 mg twice daily.Also I am not sure if I am getting placebo or the medication. Anyway any of you have been on this trial? and your experience. Also anyone was on Saracatinib trial? Kindly need your opinion. Thanks
Alam Khan . R.Ph
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4 Replies
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I am in the same trial through Temple Lung Center. I have been taking the pills since July and haven’t experienced any noticeable side effects nor any noticeable change in my symptoms. Sometimes I think my oxygen saturation is a bit higher but I could just be imagining that.
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Hi everyone, Im 67, I have had IPF since 2022. I will start that trial mid January.
I’m glad to hear that the side effects are minimal so far. I will keep you updated.
Roger.
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Is the trial for Bexotegrast?
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I am also 72 years old, and was diagnosed with IPF in the fall of 2022. In addition, I am also participating in this clinical trial. I’ve been on OFEV for about a year and a half, and initially experienced the typical gastrointestinal issues. All of that, however, is now under control. When it does flare up, I immediately take Immodium until the symptoms recede, but I have also adjusted my diet to incorporate more protein, which has had a significantly positive effect. I should also note that I exercise daily for about an hour (either inside on a stationary bike or outside on a regular bike), which seems beneficial, and, in my mind, at least, contributes, positively, to my overall mental and physical health.
In regard to the BMS clinical trial, I was recently approved and titrated up to the full dosage last month, so I am regularly monitored at the medical facility, and by regular I mean every six weeks. It’s a typical double blind study with the input variables being placebo, low and high(er) dosage levels of the actual drug being tested. Based on my own observations of the multiple blood pressure mensurations made during these regular monitoring sessions, my blood pressure typically seems to be on the low side, not too low to be discharged from the study, just lower than my normal, so my suspicion is that I’m on one of the two drug dosage levels and not the placebo, since earlier studies have shown that low blood pressure is the primary side effect. That assessment is purely conjectural on my part, though.
JIm Jackson
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