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Bone Density Issues for IPF Patients
I really enjoy reading along to many of the conversation topics that are started on this site. I looked closely at the Prednisone and Vitamin D thread, as I am vitamin D deficient and take a prescription dose of 50,000 IUs once per week. Surprisingly, many of my fellow IPF patients I’ve spoken to have also discovered they are low on vitamin D. I never linked it to Prednisone, but I wonder if it’s part of the problem. Some interesting studies link interstitial lung diseases with chronic vitamin D deficiencies, so I appreciate the conversation about this on our forums.
I wanted to post another curiosity I had and whether bone density issues are linked to IPF itself or perhaps a side effect of the medications needed to manage this disease. I know prolonged use of prednisone can cause brittle bones, but the dose I am on regularly is very low and I only increase it when I have an exacerbation. However, I have been on OFEV for a long time!
Have any of you been told to monitor your bone density levels as a result of being on OFEV or Esbriet?
In conversations with your pulmonologists, have they brought up bone density issues? Please share if so!
Many thanks.
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