An update on my dad:
We’ve decided to discontinue the Esbriet. He had a recent deterioration where his oxgyen had to be upped from 5L/min to 10L/min (8.5 at rest). So, we don’t think the Esbriet is helping anymore. And even if it is, what’s the point in suffering all the GI issues and loss of appetite if the disease will progress anyway?
We stopped the medication completely over 1 week ago and I’ve noticed his mood and appetite improve considerably. He’s still not able to eat as much but his appetite is coming back – he actually feels like eating things and gets cravings for snacks. I hope he can gain some weight and strength back – the Esbriet really made him lose so much weight and become so frail.
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