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    • #27222
      Frank Loeffler

        Since November 2019 I have been associated as a patient with the Gilead clinical trial for patients who were also taking OFEV 150mg 2X daily.

        Since starting on the trial literally a year and a quarter ago, I have virtually no adverse changes in any aspect of my health conditions.  Other than a few limited digestive side effects, I have had virtually no problems.  From what I understand in regularly reading the Forums, this may have been very good operational results.

        Today I was advised by phone that the clinical trial has ceased and I am to no longer complete the prescribed medication under study.  No information was available to discern if I received the actual drug or a placebo.  If the drug had a positive effect, no information was given on a replacement although (and I do understand) that it may take a bit of research to determine next steps, if any.


      • #27241
        Suzanne R Brennan

          I was also informed of this news.I am hoping we will get more details as to why in the coming days.

        • #27253
            1. G’day. I’m in Sydney. Been with the Trial for over 12 months. No side effects. I want to know if I was on Placebo or the resl deal and what are the specific reasons for abandoning us. Disappointed and upset with Galapagos as I have expenses reimbutsement outstanding since May 2020 and they stopped transport for me about 6 months ago. No unsatisfactory explanation offered or given.Pity, as would liked for the drug to have  worked.Best wishes to all.Geoff.




          • #27278

            Thank you to everyone for sharing your experience with the GLPG1990 trial, and that you’ve been notified of it stopping. I was so sad to read/hear this news, and can imagine you’re all feeling the same way. Please continue to share any updates about this (from credible sources) as you come across them. Such a pity!

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