This topic contains 0 replies, has 1 voice, and was last updated by  Mark Koziol 3 months, 2 weeks ago.

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     Mark Koziol 

    After my lung transplant in December of 2015 I found myself unable to yawn. This is something I wasn’t able to do for the preceding 11 months, either. Several days after I was transplanted, I was discharged from the intensive care unit (ICU) to the regular transplant floor, which is when my mouth opened wide and out came an extremely gratifying yawn. It was a wonderful feeling to be able to yawn. I didn’t know how something that is an everyday occurrence could bring me so much joy…

    When I was pre-transplant I had a hard time being able to take a deep breath, as I’m sure most of us who have suffered with this disease can relate. Among other things, not being able to take that satisfying breath was very uncomfortable. I felt like I was leaving something behind; mainly my oxygen. I suppose having a restrictive disease can do that to you.

    About 3 months past my diagnosis I reflected and thought to myself, “I haven’t yawned in quite some time and I can’t remember the last time I did.” I self-monitored this until I received my transplant. I didn’t yawn the entire time. My doctors stated this was a rare occurrence and not many patients experience this problem. There was no explanation given, other than it happens. I chalked it up to being idiopathic like my disease.

    I would take every opportunity I could in order to poll pre and post-transplant patients when I saw them at clinic visits, support group meetings, and pulmonary rehab. There were only several who had experienced this dilemma. We had all suffered not being able to yawn. I think about this often, especially when I take a deep enjoyable yawn.

    I am interested to see how many of our forum members have also experienced this dilemma?

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