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New
I was diagnosed with ILD/IPF 3 years ago. I have been on Ofev for 2 years come August. On June 6, 2025 I was put on O2 at night time. I am not sure this is the solution because I am so SOB even in the day time. I just wanted to look around & see what this forum had to offer me
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7 Replies
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What is SOB.?
Sad or boisterous and mean ?
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If you’re short of breath during the day, you may need the supplemental oxygen during the day. Do you have an oxymeter and do you check your oxygen level? You should be. What does your pulmonologist say? You should be talking to him.
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Hello,
If you’re experiencing shortness of breath during exertion you may want to talk to your doctor about pulmonary rehab. It did wonders for me.
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I tried to edit my reply to include short of breath..
I agree with other replies.
Talk to your doctor. .
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Most folks oxygen saturation drops at night when sleeping, regardless of having one of the many ILD’s we all deal with.
If you’re struggling during the day as well, you may need o2 then as well. Do you check your own oxygen levels now? Is your SOB only when exerting yourself or is it all the time? These are questions your doctor should have answers to and can prescribe a POC so you aren’t struggling to breathe.
I’m doing pulmonary rehab and it’s helping me quite a bit. Certainly not going to prolong my life; however, the quality of what I have left will be better, so it’s worth it.
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I am 91 years old and a retired physician and was diagnosed u years ago and told that I had five years to live and was started on espriet. I have started singing o2 about a year ago. I know that I am slowly progressing but at 91, I consider myself lucky.
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