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  Rare Disease Day Webinar 2/28

  Posted by Christie Patient on February 23, 2022 at 3:33 am

  

  Greetings Forum Friends! Join our Rare Disease Day virtual panel discussion next Monday, February 28th at 3 pm EST. BioNews columnists from several of our rare communities will participate in a lively conversation with fellow patient advocate Liza Bernstein. This window into often overlooked aspects of life with a rare disease will provide a variety of patient perspectives. Topics will include awareness and advocacy, equity, mental health, empowerment, and more. We invite everyone to join us for this signature event and look forward to your participation in the Q and A! Paris Dancy of Cushing’s disease News, Michelle Gonzaba of Myasthenia Gravis News, Claire Richmond of Porphyria News, and Sherry Toh of SMA News Today will be on the panel to discuss rare disease topics with Liza, and will be available for an interactive Q&A afterward.

  The webinar is free and will be available to view after the live stream as well, as long as you register in advance. Visit this link to register for the event, and we look forward to seeing you there!

  Christie Patient replied 2 years, 2 months ago 0 Member · 0 Replies

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