I use an INOGEN ONE G5 on the golf course regularly. Set at 1 to 5, but find no real difference. Helps with fatigue. I carry it on the plane but have never had to use it. I set it at 1 and on airplanes.

this model has a double battery pack with wall outlet and car accesibility.

Jai, I rented for a couple of years and just bought the device for $4500 cdn. Call BIOFLEX LASER and ask for Slava. (416) 251-1055) If you tell him I sent you, he will charge you more ….hahaha. Good luck!

BTW, I have used the device for about 2 years and my local respirologist said I have been stable for that same period. Of course cant say…

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I have been using a BIOFLEX low level laser device for two years and the last visit with me local respirologist in May 2025 concluded that my IPF was stable for the last couple of years. Neither of my respirologists believe that laser treatment is effect but my view is that I don’t know what is, the pirfenidone or the laser, or the combination,…

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I have been using laser treatments for about a year and a half. They do not claim to reduce scarring but rather stop it or slow it down dramatically. In that time i have had very, very little if any deterioration. The laser clinic claims they are the reason, the respirologist says its the pirfenidone doing its work. I do not want to stop…

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I have been on Esbriet and pirfenidone for almost 4 years. It seems the last year or so I have been experiencing significant morning fatigue and loss of breathe with relatively minor daily routines. I also have significant cardio issues so not sure of cause? I have 6 stents…..

My breathing tests and CT scans have shown very, very…

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How do we find out more ?

John, thank you very much for sharing. A ll best to you.

John, might you share your experience with all on this site? i certainly would be interested as I’m sure many more would.

thank you so much….

Hey Ben, I’m hesitant to try Wei because of the cost. What are the 19 veggie capsuls and the CL for two months?

Good morning all,

I just wanted to let all know that I am scheduled for he covid booster shot tomorrow October 1. After trying my respirologist and MD i called York Region Health Care Unit and booked the appointment on the phone! You need to be persistant with the choices on their email system!!

Allan, so sorry to hear this. I was hoping to try it!! I think I’ll wait until after my breathing tests in December and then re consider.

Charlene and anonymous, I used to be a one or two glass of red Italian wine almost every day. Since the IPF in September 2020 and the Esbriet I have reduced that to one 6 ounce glass 4 0r 5 times a week either red or white depending on the food. It is a little pleasure in life…..:):):)

Lnour, Ben, Pete, Jerry and William,

Thank you very much for this information. I live in Canada, in a suburb of Toronto. Is there anyone in Canada that will undertake this procedure, if any of you happen to live here and does anyone of you know the cost of the procedure(s)?

God bless you all, Carlo

Good morning all,

I have been on 9 Esbriet since November 2020. I have most I’d the side effects mentioned in this discussion chain. I have no idea about the effects of reducing the dosage would be but can suggest three things that seem to have helped with the nausea and fatigue.

1. I take the meds religiously with every meal at least 4.5… Read more

Hey Steve,

Thank you for the reply. What are you taking it for? What does it do for you?

Thanks again, Carlo

Hey Steve,

Thank you for the reply. What are you taking it for? What does it do for you?

Thanks again, Carlo

Hey Steve and Charlene, you both seem to very active and experienced in various matters relating to IPF. I am relatively new, being diagnosed September, 2020 and have been on Esbriet since then.

My original local respirologist retired in November last year and met a new one ( virtually) in March this year who thought that part of my lung… Read more

Interesting article on MLB. Hope to see more comments. I have not tried it.

condolences to family and friends.

I have not, but would love to hear from anyone who has. Does it reduce the fibrosis or only slow down the progress as Esbriet is supposed to?

Hi John, I wish I knew the answer to that. I was diagnosed about 8 months ago and have issues with shortness of breathe and nausea and fatigue. I did have carcinoid cancer in my upper right lung in 2012 so I have had CT scans at least annually since the. My recent diagnosis implied that the disease was there 5 or 6 years ago and has progressed… Read more

Ben, good luck! Keep us all in the loop. I am considering more research on this Wei Labs stuff after CT scan and breathing test this month.

oops!! where did my post go about WEI???

Cheryl, I look forward to the  comments from your  pulmonologist.

Augusta, Glad to hear your optimism! I have a similar history. I was diagnosed in September 2020 at which time it was noted that I was probably with IPF in 2015. There has been some progression in the disease in the 5 years but at a slow pace…good news to me. I have a CT scan and breathing tests coming up in April so we will see what… Read more

I did not know that throat clearing is a sign of the progression of the disease??? Can someone comment on this for me please? I am clearing my throat much more in the couple of  weeks but attributed it to spring seasonal allergies.

I just registered in York Region for my first shot March 28 and my second shot July 18. There was no definitive definition that would have given me any priority due to my IPF even in the second Phase, which was supposed to start in April. So the progress is going faster then expected, due either to overly pessimistic government projections or… Read more

Thank you Christie! I have a CT scan and a breathing test in April, so we will see what we need or could do to get that up a bit. I need a challenge to stay motivated….

Manzurul, that’s terrific! How do you get the inspiration to walk every single day? I am a 73 year old and was diagnosed in September 2020. I am struggling at 3 times a week. I walk at 115 steps per minute for 40 minutes at 2.8mph. So that would be 13,800 on my treadmill. Your total steps at my rate would be almost an hour and a half  per… Read more

Lnour, absolutely agree!

 

Wow! This discussion has been going on for two years!

I am a wine drinker, almost always red Tuscan Italian and one glass almost every dinner and occasionally a second or part of a second with fruit and cheese after dinner. When I spoke with Dr Shapera ( when I entered the IPL clinic at TGH in September, 2020 ) he had no objection… Read more

Doctor Don ( if I may), Thank you so much for your reply. It is always so much it seems I don’t know.

My oximeter is exactly like a coupe in the ‘best’ list on google…meaning nothing to me as it came directly from China, unknown to me until I received the shipping status. I guess I can test it the next time I’m getting a covid test or in… Read more

Dear Dr. Salzberg,

First things first! Do your friends call you Doctor Donald or Donald Doc?

Was you initial comment about my brilliant assessment or about Mark’s brilliant replies.

Was your comment about nail polish meant as your best medical advice or were you addressing the ladies on the site?

Seriously, I would love some feed back… Read more

Great positivity here! thank you…

I need a target. i am 73 years old ( shh,  don’t tell anyone ) diagnosed with IPF September, 2020 and went on Esbriet. Do have side effects from the Esbriet, but want to know how others are doing walking ( now on a treadmill in doors because of the cold )

I walk for 30 minutes at 2.8mph on a slight incline… Read more

Mark, very impressed with you replies to Marj. Marj, good luck with your husband.

Does the “KEYMASTER” blue tab on your reply mean you are really smart or just smarter than me?

Either way, i have been on Esbriet since the end of September, 2020 and am still experiencing nausea, headaches and lightheadedness. This was substantially reduced… Read more

hi Sherman, thanks for the comment on this thread. I really don’t have much of an issue with cough or clearing flehm in the morning. i do wake up with a “sore throat which i guess is gunk (very technical term) but it disappears as soon as I have a glass of water or couple sips of coffee.

My concern is that the Esbriet is supposed to only… Read more

Traditional doctors won’t comment on naturopathic meds due to lack of empirical testing and even naturopathic doctors tend to have a group of meds they provide and stay with what they know. That is why it is so important that we share what ever little bit of information we can amongst ourselves.

Jill, Thank you very much for your comments. I am on Esbriet, since end of September, 2020. I am scheduled to virtually meet a new respirologist in a couple of weeks and get his opinion then.

Eileen , Denny

Thank  you both for your comments. I will speak to my new local respirologist in a virtual appointment in a couple of weeks and discuss with him at that time.

Carlo

Denny, I think ! saw your reply earlier and can’t find if I questioned it then or not?  Are you saying your plateauing was because of the Wei products or because of the hockey? Are you saying the Wei products only helped with your GERD?

Apologies for the repetition, if so!

I was diagnosed with IPF end of September, 2020. I have been on Esbriet since, so just mid month four. Although diagnosed recently there were signs of lung deterioration 5 years ago. I was getting annual CT scans to keep an eye on me lungs since I had a VATS lobectomy for carcinoid cancer almost 9 years ago. My first few months with Esbriet… Read more

QUOTE FROM GLOBAL TY POSTING JUST NOW DEC 29 AT 11:52

Gen. Rick Hillier, the head of Ontario’s vaccine distribution task force, laid out the three-phase plan again providing numbers of Ontarians expected to be vaccinated based on vaccine supply.

Hillier said Phase 1 will be completed roughly by the end of March with about 1 to 1.5 million… Read more

Hey Charlene, Where’s home? That’s a great background on your photo…where’s that? I certainly will post any info I hear or see about covid vaccine.

I have been of Esbriet for three months now and still suffer nausea and fatigue. Esbriet nurse suggest taking the three tablets beginning, mid and end of meal. Slight improvement in nausea, none in fatigue after three days

Carlo

Good morning Charlene and all others,

I live in Richmond Hill, just north of Toronto, Canada ( for our American friends) and have just now again checked the MacKenzie Hospital Richmond Hill web site and no reference yet to seniors with or without other factors (IPF, for example) on any possible schedule until later on the winter, ( not defined… Read more

I have dealt with arthritis most of my life. I have taken a variety of pain killers with not much success. Summer 2019 I had cortisone injected into both hips and one knee. I had two PRP ( platelet rich plasma ) treatments on both hips and one knee. The cortisone and PRP were moderately ,but very short term, successful. I also went through… Read more

That’s great news! I’m not sure if it’s the Esbriet or just new lazy Laois you eating habits but I’ve gained about 20 pounds in the last 10 months….some I think is COVID isolation and maybe some Esbriet? Others gain weight on Esbriet??