Forum Replies Created

  • Joan ciccarelli

    Member
    February 16, 2022 at 10:22 am in reply to: Extreme Fatigue

    Hi
    I have had ipf for a long time i am getting
    Problems with what i call attacks of real bad
    Out of breath doing almost nothing the only thing I can say is get into bed or find what you call your safe place and try very hard to relax i know how hard itbis i am even on oxygen i feel i have a very good lung doctor but with this virus hevonly talks to me on the phone hope you have a good doctor
    Keep safe

  • Joan ciccarelli

    Member
    February 10, 2022 at 10:16 am in reply to: Possible Cause of IPF – Ammonia ingestion and Statin?? Progressive?

    Hi I have if have had it for years no one actually knows what caused this awful disease

  • Joan ciccarelli

    Member
    February 10, 2022 at 10:11 am in reply to: Possible Cause of IPF – Ammonia ingestion and Statin?? Progressive?

    Hihhhihh

  • Joan ciccarelli

    Member
    May 7, 2021 at 2:02 pm in reply to: Laser and ipf

    I have asked my doctor re lazzer and he has not got back to me yet  I am on oxygen liquid a d air 24 7 take prednisone which bells quite a bit also have a puffer and have morphine if I need it my doctor is usually pretty good but due to the virus he only phones me in Canada lazzer may be hard to fi d

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