David Morgan
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I seem to be a “mouth breather” as well, although I am working on technique to improve. My pulse rate jumps up almost as hi as a fetus with a moderate amount. Of exertion 140s and dats low 80s so o2 brings everything back within manageable I guess windows but I always have muscle pains because I can’t sleep with this new o2 apparatus wrapped around my self, dampness in cannula, etc… I suppose it’s a learning curve as I’m only on 1-2 lpm now Imogen and home concentration. But I also have swallowing and choking issues if I don’t slow down SOB..So..I pause and ( prior military) actually try to swallow with syncing my breathing in cadence if u will. Emotional times, coughing, exertion, frustration all trigger SOB. I was told by pulmonologist that face mask like in hospitals weren’t recommended but thanks to yall I’m going back at her because sleeping with o2 would be a blessing come morning time. ~ David
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David Morgan
MemberAugust 10, 2022 at 7:59 am in reply to: When You Don’t Want to Talk About PF AppointmentsI am 50 y/0 and the thoughts of my parents ( 70’s) and daughter ( Sr. Highschool) about my diagnosis haunt me more than my ultimate destination. I feel like I have so much unfinished business so sharing with them and imparting the reality at this time is beyond words although I try my best to be diligent and a good steward of information for their awareness. I lean heavily upon my Faith in God and trust in doctors but in truth its overwhelming. Especially trying to get qualified for assistance with ofev which I cannot afford the co-pays after insurance. I continue to count my blessings and try to live well each day and maintain hope but I often fail.