Forum Replies Created

  • David Morgan

    Member
    April 12, 2023 at 8:51 am in reply to: Shortness of breath and how to catch it

    I seem to be a “mouth breather” as well, although I am working on technique to improve.  My pulse rate jumps up almost as hi as a fetus with a moderate amount. Of exertion 140s and dats low 80s so o2 brings everything back within manageable I guess windows but I always have muscle pains because I can’t sleep with this new o2 apparatus wrapped around my self, dampness in cannula,  etc… I suppose it’s a learning curve as I’m only on 1-2 lpm now Imogen and home concentration.  But I also have swallowing and choking issues if I don’t slow down SOB..So..I pause and ( prior military) actually try to swallow with syncing my breathing in cadence if u will. Emotional times, coughing,  exertion,  frustration all trigger SOB. I was told by pulmonologist that face mask like in hospitals weren’t recommended but thanks to yall I’m going back at her because sleeping with o2 would be a blessing come morning time. ~ David

  • David Morgan

    Member
    August 10, 2022 at 7:59 am in reply to: When You Don’t Want to Talk About PF Appointments

    I am 50 y/0 and the thoughts of my parents ( 70’s) and daughter ( Sr. Highschool) about my diagnosis haunt me more than my ultimate destination.  I feel like I have so much unfinished business so sharing with them and imparting the reality at this time is beyond words although I try my best to be diligent and a good steward of information for their awareness.  I lean heavily upon my Faith in God and trust in doctors but in truth its overwhelming.  Especially trying to get qualified for assistance with ofev which I cannot afford the co-pays after insurance.  I continue to count my blessings and try to live well each day and maintain hope but I often fail.